Can adults with low literacy understand shared decision making questions? A qualitative investigation

被引：24

作者：

Muscat, Danielle M. ^{[1
,2
]}

Shepherd, Heather L. ^{[2
,3
]}

Morony, Suzanne ^{[1
,2
]}

Smith, Sian K. ^{[4
]}

Dhillon, Haryana M. ^{[5
,6
]}

Trevena, Lyndal ^{[1
,2
]}

Hayen, Andrew ^{[7
]}

Luxford, Karen ^{[8
]}

Nutbeam, Don ^{[9
]}

McCaffery, Kirsten ^{[1
,2
]}

机构：

[1] Univ Sydney, Sydney Sch Publ Hlth, Screening & Test Evaluat Program, Sydney, NSW 2006, Australia

[2] Univ Sydney, Sydney Sch Publ Hlth, Ctr Med Psychol & Evidence Based Decis Making, Sydney, NSW 2006, Australia

[3] Univ Sydney, Sch Psychol, Psycho Oncol Cooperat Res Grp, Sydney, NSW 2006, Australia

[4] Univ New South Wales, Fac Med, Prince Wales Clin Sch, Psychosocial Res Grp, Sydney, NSW 2052, Australia

[5] Univ Sydney, Concord Clin Sch, Ctr Med Psychol & Evidence Based Decis Making, Sydney, NSW 2006, Australia

[6] Univ Sydney, Sch Psychol, Sydney, NSW 2006, Australia

[7] Univ New South Wales, Sch Publ Hlth & Community Med, Sydney, NSW 2052, Australia

[8] Clin Excellence Commiss, Patient Based Care, Sydney, NSW, Australia

[9] Univ Southampton, Off Vice Chancellor, Southampton SO9 5NH, Hants, England

来源：

PATIENT EDUCATION AND COUNSELING | 2016年 / 99卷 / 11期

基金：

澳大利亚研究理事会;

关键词：

Shared decision making; Consumer; Low literacy; Questions; Patient involvement; Qualitative; HEALTH LITERACY;

D O I：

10.1016/j.pec.2016.05.008

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective: Participation in shared decision-making (SDM) may be difficult for adults with lower literacy. Tools to support consumers to engage in SDM are rarely designed for or evaluated with adults with lower literacy and/or poor English language. Methods: Qualitative interviews were conducted with 26 adults with lower literacy and/or poor English language skills to investigate (a) whether participants where able to read and understand two generic SDM consumer support tools (Smart Health Choices and AskShareKnow question-sets), (b) which question-set was easier for participants and, (c) perceived usefulness of the question-sets and barriers to use. Interviews were analysed using Framework Analysis. Results: Participants had difficulties understanding terms embedded within both the AskShareKnow and Smart Health Choices questions. Our findings suggest that the AskShareKnow question-set was easier for our participants than the Smart Health Choices questions, and clarification using a structured response was reasonably effective. While participants appreciated the usefulness of the questions, they identified important barriers to use. Conclusions: Generic question-sets alone are not sufficient to support SDM for adults with lower literacy and/or poor English-language skills. Practice implications: To ensure that SDM is accessible to all, we must consider how best to support adults with low literacy and/or poor English-language skills to participate in this process. (C) 2016 Published by Elsevier Ireland Ltd.

引用

页码：1796 / 1802

页数：7

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