The Unique Experience of Spouses in Early-Onset Dementia

被引：94

作者：

Ducharme, Francine ^{[1
]}

Kergoat, Marie-Jeanne ^{[2
,3
]}

Antoine, Pascal ^{[4
]}

Pasquier, Florence ^{[5
]}

Coulombe, Renee ^{[6
]}

机构：

[1] Univ Montreal, Ctr Rech, Inst Univ Geriatrie Montreal, Fac Sci Infirmieres, Montreal, PQ H3W 1W5, Canada

[2] Inst Univ Geriatrie Montreal, Dept Specialized Med, Montreal, PQ, Canada

[3] Inst Univ Geriatrie Montreal, Memory Clin, Montreal, PQ, Canada

[4] Univ Lille 3, Dept Psychopathol & Clin Hlth Psychol, F-59653 Villeneuve Dascq, France

[5] Univ Lille, Ctr Natl Reference Patients Jeunes Atteints Malad, Lille, France

[6] Inst Univ Geriatrie Montreal, Ctr Rech, Montreal, PQ, Canada

来源：

AMERICAN JOURNAL OF ALZHEIMERS DISEASE AND OTHER DEMENTIAS | 2013年 / 28卷 / 06期

基金：

加拿大健康研究院;

关键词：

spouse caregivers; early-onset dementia; lived experience; qualitative study; support interventions; FAMILY CAREGIVERS; RISK-FACTOR; INTERVENTION; DIAGNOSIS; PEOPLE; BURDEN; IMPACT; NEEDS; CARE;

D O I：

10.1177/1533317513494443

中图分类号：

R592 [老年病学]; C [社会科学总论];

学科分类号：

03 ; 0303 ; 100203 ;

摘要：

To date, few studies have examined the experience of spouse caregivers living with a person with early-onset dementia. Moreover, few support resources are offered to these family caregivers and fewer are still tailored to their unique trajectory. The aim of this qualitative study was to document the lived experience of spouse caregivers of young patients in order to inform the development of professional support tailored to their reality. A sample of 12 spouses of persons diagnosed with dementia before the age of 65 participated in semistructured interviews. Six themes emerged from their caregiver trajectories, namely, difficulty managing behavioral and psychological symptoms, long quest for diagnosis, nondisclosure to others and denial of diagnosis, grief for loss of spouse and midlife projects, difficulty juggling unexpected role and daily life responsibilities, and difficulty planning for future. Results open up innovative avenues for the development of interventions geared to facilitating role transition for these spouse caregivers.

引用

页码：634 / 641

页数：8

共 38 条

[1]

[Anonymous], 2006, EARL ONS DEM NAT CHA

[2]

[Anonymous], 2010, METAREVIEW INT EVIDE

[3] Do family caregivers perceive more difficulty when they look after patients with early onset dementia compared to those with late onset dementia? [J].