Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals

被引：4

作者：

Hashem, Ferhana ^{[1
]}

Stephensen, David ^{[2
,3
]}

Drechsler, Wendy, I ^{[4
]}

Bladen, Melanie ^{[5
,6
]}

Carroll, Liz ^{[7
]}

Tracy, Pellatt-Higgins ^{[1
]}

Saloniki, Eirini-Christina ^{[1
,8
]}

机构：

[1] Univ Kent, Ctr Hlth Serv Studies, George Allen Wing,Cornwallis Bldg, Canterbury CT2 7NF, Kent, England

[2] East Kent Hosp Univ NHS Trust, Haemophilia & Thrombosis Ctr, Canterbury, Kent, England

[3] Royal London Hosp, Haemophilia Ctr, London, England

[4] Kings Coll London, Sch Populat Hlth & Environm Sci, London, England

[5] Great Ormond St Hosp Children NHS Fdn Trust, Haemophilia Ctr, London, England

[6] UCL, Inst Child Hlth, London, England

[7] Haemophilia Soc UK, London, England

[8] Univ Kent, Personal Social Serv Res Unit, Canterbury, Kent, England

来源：

HEALTH EXPECTATIONS | 2020年 / 23卷 / 05期

基金：

美国国家卫生研究院;

关键词：

Boys; Exercise; Haemophilia; Life-experience; Muscle strength; Patient adherence; Physiotherapy; ACCEPTABILITY; PERSPECTIVES; ADHERENCE; CHILDREN; DESIGN;

D O I：

10.1111/hex.13119

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background Muscle strengthening exercises have the potential to improve outcomes for boys with haemophilia, but it is unclear what types of exercise might be of benefit. We elicited the views of health-care professionals, boys and their families to create and assess a home-based muscle strengthening programme. Objective To design and develop a muscle strengthening programme with health-care professionals aimed at improving musculoskeletal health, and refine the intervention by engaging boys with haemophilia and their families (Study 1). Following delivery, qualitatively evaluate the feasibility and acceptability of the exercise programme with the boys and the study's physiotherapists (Study 2). Design A person-based approach was used for planning and designing the exercise programme, and evaluating it post-delivery. The following methods were utilized: modified nominal group technique (NGT) with health-care professionals; focus group with families; exit interviews with boys; and interviews with the study's physiotherapists. Results Themes identified to design and develop the intervention included exercises to lower limb and foot, dosage, age accommodating, location, supervision and monitoring and incentivization. Programme refinements were carried out following engagement with the boys and families who commented on: dosage, location, supervision and incentivization. Following delivery, the boys and physiotherapists commented on progression and adaptation, physiotherapist contact, goal-setting, creating routines and identifying suitable timeframes, and a repeated theme of incentivization. Conclusions An exercise intervention was designed and refined through engagement with boys and their families. Boys and physiotherapists involved in the intervention's delivery were consulted who found the exercises to be generally acceptable with some minor refinements necessary.

引用

页码：1350 / 1361

页数：12

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