The social impact of early psychological maturity in adolescents with cancer

被引:12
|
作者
Anthony, Samantha J. [1 ,2 ]
Robertson, Taylor [1 ]
Selkirk, Enid [3 ]
Dix, David [4 ]
Klaassen, Robert J. [5 ]
Sung, Lillian [6 ]
Klassen, Anne F. [7 ]
机构
[1] Hosp Sick Children, Child Hlth Evaluat Sci, Peter Gilgan Ctr Res & Learning, Toronto, ON, Canada
[2] Univ Toronto, Factor Inwentash Fac Social Work, Toronto, ON, Canada
[3] McMaster Univ, Sch Rehabil Sci, Hamilton, ON, Canada
[4] BC Childrens Hosp, Dept Pediat Hem Onc BMT, Vancouver, BC, Canada
[5] Childrens Hosp Eastern Ontario, Dept Pediat, Ottawa, ON, Canada
[6] Hosp Sick Children, Div Haematol Oncol, Toronto, ON, Canada
[7] McMaster Univ, Dept Pediat, Hamilton, ON, Canada
关键词
cancer; oncology; pediatric; psychological maturity; qualitative; social function; QUALITY-OF-LIFE; PEER SUPPORT; YOUNG-ADULTS; SURVIVORS; ADJUSTMENT; CHALLENGES; EXPERIENCE; ENGAGEMENT; DIAGNOSIS; CHILDREN;
D O I
10.1002/pon.4982
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objective There is a growing need to assess the long-term quality of life (QOL) of pediatric oncology patients since many children now survive their disease. This paper highlights the subjective perspectives of pediatric cancer patients and specifically explores how experiencing cancer at a young age impacts adolescents in the areas of social functioning, peer relationships, and QOL. The findings emerged from a qualitative research study that explored how pediatric oncology patients ascribe meaning to their illness. Methods Study participants were recruited from four Canadian academic pediatric hospitals. In this study, we used an interpretative description approach. Semistructured interviews were completed, transcribed verbatim, and coded through the method of constant comparison. Results A total of 37 children and adolescents (n = 19 female; 51%) participated. The majority of participants were diagnosed with leukemia (n = 16; 43%) or lymphoma (n = 9; 24%). Sixty-two percent of participants were adolescents between the ages of 13 and 18 years (n = 23). Data illustrated a unique adolescent experience, which has been reported as a subset of the original population. Adolescent participants noted an accelerated experience of maturation, which invited reflections of gratitude as well as feelings of isolation and disconnect from peers. Participants were saddened to have "missed out" on normative parts of childhood. Conclusion Findings highlighted experiences of accelerated maturity that prompted adverse social outcomes for adolescent participants, which impacted their QOL. Future research is needed to explore the intersection of accelerated maturity attributed to illness, social functioning, and QOL. Peer support through technology engagement is suggested for this population.
引用
收藏
页码:586 / 592
页数:7
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