Choice and compassion at the end of life: A critical analysis of recent English policy discourse

被引:66
作者
Borgstrom, Erica [1 ]
Walter, Tony [2 ]
机构
[1] Univ Cambridge, Inst Publ Hlth, Dept Publ Hlth & Primary Care, Primary Care Unity, Cambridge CB2 0SR, England
[2] Univ Bath, Dept Social & Policy Sci, Ctr Death & Soc, Bath BA2 7AY, Avon, England
关键词
England; End of life care; Choice; Compassion; Discourse; Old age; Relational ethics; Governmentality; CARE; DEATH; ETHICS; VIEWS; LABOR;
D O I
10.1016/j.socscimed.2015.05.013
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
End of life care in England has recently been framed by two very different discourses. One (connected to advance care planning) promotes personal choice, the other promotes compassionate care; both are prominent in professional, policy and media settings. The article outlines the history of who promoted each discourse from 2008 to early 2015, when, why and how and this was done. Each discourse is then critically analysed from a standpoint that takes account of bodily decline, structural constraints, and human relationality. We focus on the biggest group of those nearing the end of their life, namely frail very old people suffering multiple conditions. In their care within contemporary healthcare organisations, choice becomes a tick box and compassion a commodity. Informed choice, whether at the end of life or in advance of it, does not guarantee the death the person wants, especially for those dying of conditions other than cancer and in the absence of universally available skilled and compassionate care. Enabling healthcare staff to provide compassionate, relational care, however, implies reversing the philosophical, political and financial direction of healthcare in the UK and most other Anglophone countries. (C) 2015 Elsevier Ltd. All rights reserved.
引用
收藏
页码:99 / 105
页数:7
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