Quality of life as patient-reported outcomes: principles of assessment

被引:0
作者
Bullinger, Monika [1 ]
Quitmann, Julia [1 ]
机构
[1] Univ Med Ctr Hamburg Eppendorf, Dept Med Psychol, Martinistr 52, D-20246 Hamburg, Germany
关键词
adult; instrument; mental health; patient report; quality of life; DISEASE-SPECIFIC MEASURES; CLINICAL-TRIALS; HEALTH-STATUS; SCHIZOPHRENIA; DISORDERS; PHARMACOTHERAPY; PSYCHOTHERAPY; OLANZAPINE; CLOZAPINE; BURDEN;
D O I
暂无
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
Assessing quality of life (QoL) as a patient-reported outcome in adult psychiatry poses challenges in terms of concepts, methods, and applications in research and practice. This review will outline conceptually the construct of QoL, its dimensionality, and its representation across patient groups. Methodological challenges are examined, along with principles of QoL instrument development and testing, as well as across cultures. Application of instruments in epidemiological, clinical health economics, and health services research is reviewed based on pertinent literature. Validated measures for depression, psychosis, and anxiety disorders are available in adult psychiatry, and are increasingly used in research. Still, targeted measures are lacking for many mental health conditions and only rarely are tools applied in the practice context. Progress has been made in the development of instruments that are now ready for implementation. The information to be gained is valuable for identifying patient-reported needs for and benefits of treatment. (C) 2014, AICH - Servier Research Group
引用
收藏
页码:137 / 145
页数:9
相关论文
共 69 条
[41]   Current issues in schizophrenia: Overview of patient acceptability, functioning capacity and quality of life [J].
Lambert, M ;
Naber, D .
CNS DRUGS, 2004, 18 (Suppl 2) :5-17
[42]   A QUALITY OF LIFE INTERVIEW FOR THE CHRONICALLY MENTALLY-ILL [J].
LEHMAN, AF .
EVALUATION AND PROGRAM PLANNING, 1988, 11 (01) :51-62
[43]   Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force [J].
Matza, Louis S. ;
Patrick, Donald L. ;
Riley, Anne W. ;
Alexander, John J. ;
Rajmil, Luis ;
Pleil, Andreas M. ;
Bullinger, Monika .
VALUE IN HEALTH, 2013, 16 (04) :461-479
[44]  
MELTZER HY, 1990, HOSP COMMUNITY PSYCH, V41, P892
[45]   Burden of bipolar depression: Impact of disorder and medications on quality of life [J].
Michalak, Erin E. ;
Murray, Greg ;
Young, Allan H. ;
Lam, Raymond W. .
CNS DRUGS, 2008, 22 (05) :389-406
[46]   The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study [J].
Mokkink, Lidwine B. ;
Terwee, Caroline B. ;
Patrick, Donald L. ;
Alonso, Jordi ;
Stratford, Paul W. ;
Knol, Dirk L. ;
Bouter, Lex M. ;
de Vet, Henrica C. W. .
QUALITY OF LIFE RESEARCH, 2010, 19 (04) :539-549
[47]   Improvement of schizophrenic patients' subjective well-being under atypical antipsychotic drugs [J].
Naber, D ;
Moritz, S ;
Lambert, M ;
Rajonk, F ;
Holzbach, R ;
Mass, R ;
Andresen, B ;
Frank, P ;
Rüdiger, H ;
Reinhard, M ;
Burghard, A .
SCHIZOPHRENIA RESEARCH, 2001, 50 (1-2) :79-88
[48]   Randomized double blind comparison of olanzapine vs. clozapine on subjective well-being and clinical outcome in patients with schizophrenia [J].
Naber, D ;
Riedel, M ;
Klimke, A ;
Vorbach, EU ;
Lambert, M ;
Kühn, KU ;
Bender, S ;
Bandelow, B ;
Lemmer, W ;
Moritz, S ;
Dittmann, RW .
ACTA PSYCHIATRICA SCANDINAVICA, 2005, 111 (02) :106-115
[49]  
Naber D, 2010, GRUNDLAGEN NEUROPSYC, P465
[50]  
Nguyen TH, 2014, PATIENT