End-of-Life Care in Pediatrics Ethics, Controversies, and Optimizing the Quality of Death

被引:15
作者
Basu, Rajit K. [1 ]
机构
[1] Univ Cincinnati, Div Crit Care, Dept Pediat, Cincinnati Childrens Hosp & Med Ctr, Cincinnati, OH 45229 USA
关键词
Pediatric end-of-life care; Quality of death; COMPLEX CHRONIC CONDITIONS; CRITICALLY-ILL CHILDREN; PALLIATIVE CARE; PARENTS PERSPECTIVES; SUSTAINING TREATMENT; FAMILY PERSPECTIVES; HEALTH-CARE; UNIT; COMMUNICATION; EDUCATION;
D O I
10.1016/j.pcl.2013.02.009
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Hospitalized children constitute most annual pediatric deaths in the United States. The details of "how-to" provide end-of-life (EOL) care are not consistently taught to staff and therefore the actual delivery of EOL care is often inconsistent and invariably negatively associated with the long-term mental health of both the patient's family and care providers. This review describes the pertinent aspects of end-of-life care in pediatrics. Finally, a framework to optimize the quality of death is described, which underscores the importance of synchrony between the care team and the family at the end of a child's life.
引用
收藏
页码:725 / +
页数:17
相关论文
共 57 条
[1]   Ethnicity and attitudes towards life sustaining technology [J].
Blackhall, LJ ;
Frank, G ;
Murphy, ST ;
Michel, V ;
Palmer, JM ;
Azen, SP .
SOCIAL SCIENCE & MEDICINE, 1999, 48 (12) :1779-1789
[2]   End-of-life care in the pediatric intensive cave unit after the forgoing of life-sustaining treatment [J].
Burns, JP ;
Mitchell, C ;
Outwater, KM ;
Geller, M ;
Griffith, JL ;
Todres, ID ;
Truog, RD .
CRITICAL CARE MEDICINE, 2000, 28 (08) :3060-3066
[3]   End-of-life care in the pediatric intensive care unit: research review and recommendations [J].
Burns, JP ;
Rushton, CH .
CRITICAL CARE CLINICS, 2004, 20 (03) :467-+
[4]  
Butler R, 1993, J Am Osteopath Assoc, V93, P789
[5]   Family perspectives on the quality of pediatric palliative care [J].
Contro, N ;
Larson, J ;
Scofield, S ;
Sourkes, B ;
Cohen, H .
ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE, 2002, 156 (01) :14-19
[6]   Hospital staff and family perspectives regarding quality of pediatric palliative care [J].
Contro, NA ;
Larson, J ;
Scofield, S ;
Sourkes, B ;
Cohen, HJ .
PEDIATRICS, 2004, 114 (05) :1248-1252
[7]   Patient-centered communication, ratings of care, and concordance of patient and physician race [J].
Cooper, LA ;
Roter, DL ;
Johnson, RL ;
Ford, DE ;
Steinwachs, DM ;
Powe, NR .
ANNALS OF INTERNAL MEDICINE, 2003, 139 (11) :907-915
[8]   Barriers to palliative care for children: Perceptions of pediatric health care providers [J].
Davies, Betty ;
Sehring, Sally A. ;
Partridge, J. Colin ;
Cooper, Bruce A. ;
Hughes, Anne ;
Philp, Julie C. ;
Amidi-Nouri, Aara ;
Kramer, Robin F. .
PEDIATRICS, 2008, 121 (02) :282-288
[9]  
*DICT MERR WEBST, 2012, DICT M WEBST ON LIN
[10]   Communicating sad, bad, and difficult news in medicine [J].
Fallowfield, L ;
Jenkins, V .
LANCET, 2004, 363 (9405) :312-319