Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion

被引:37
|
作者
Boulton, Tiffany [1 ]
机构
[1] Univ Lethbridge, Dept Sociol, 4401 Univ Dr, Lethbridge, AB T1K 3M4, Canada
关键词
fibromyalgia; diagnosis; sociology of diagnosis; uncertainty; medically unexplained illness; in-depth qualitative interviews; narrative analysis Canada; United Kingdom; CHRONIC-FATIGUE-SYNDROME; CHRONIC PAIN; CONTESTED ILLNESSES; WOMENS EXPERIENCES; PATIENT; SOCIOLOGY; POWER; SELF; UNCERTAINTY; ENCOUNTERS;
D O I
10.1177/1049732318804509
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The diagnostic process promises a label that validates patients' embodied experiences and a road map for living with and treating illness. Drawing on 31 qualitative interviews with women and men in Canada and the United Kingdom who have been diagnosed with fibromyalgia (FM), in this article, I examine the participants' experiences of the diagnostic process and how they feel about receiving this label. The interviews reflect that the FM label is plagued by uncertainty because the diagnosis is based on the absence of verifiable pathology. The respondents' narratives also reveal that FM is a vague diagnosis that includes a multitude of symptoms, overlaps with several other diagnoses, and results in feelings of doubt regarding whether it is the correct label. Thus, the participants' narratives reflect that the FM diagnosis is largely an empty promise because it fails to provide definitive answers or confer meaning and legitimacy to their illness experiences.
引用
收藏
页码:809 / 819
页数:11
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