Support Needs of Siblings of People with Developmental Disabilities

被引：73

作者：

Arnold, Catherine K. ^{[1
]}

Heller, Tamar

Kramer, John ^{[2
]}

机构：

[1] Univ Illinois, Dept Disabil & Human Dev, Chicago, IL 60608 USA

[2] Univ Massachusetts, Boston, MA 02125 USA

来源：

INTELLECTUAL AND DEVELOPMENTAL DISABILITIES | 2012年 / 50卷 / 05期

关键词：

siblings; families; family support; FAMILY CAREGIVERS; CHILDREN; ADULTS;

D O I：

10.1352/1934-9556-50.5.373

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis, interpretation of findings, and discussion using the constant comparison method. Eleven core variables and 3 overarching themes emerged. Three overarching themes for sibling support needs include: (a) getting disability-related information, (b) getting support for their caregiving role, and (c) enhancing the formal support system to address sibling needs.

引用

页码：373 / 382

页数：10