Support Needs of Siblings of People with Developmental Disabilities

被引:73
作者
Arnold, Catherine K. [1 ]
Heller, Tamar
Kramer, John [2 ]
机构
[1] Univ Illinois, Dept Disabil & Human Dev, Chicago, IL 60608 USA
[2] Univ Massachusetts, Boston, MA 02125 USA
关键词
siblings; families; family support; FAMILY CAREGIVERS; CHILDREN; ADULTS;
D O I
10.1352/1934-9556-50.5.373
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis, interpretation of findings, and discussion using the constant comparison method. Eleven core variables and 3 overarching themes emerged. Three overarching themes for sibling support needs include: (a) getting disability-related information, (b) getting support for their caregiving role, and (c) enhancing the formal support system to address sibling needs.
引用
收藏
页码:373 / 382
页数:10
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