Genomic medicine: considerations for health professionals and the public

被引：16
作者：
Avard, Denise
Knoppers, Bartha Maria
机构：
[1] Pavillon Maximilien-Caron,
来源：
GENOME MEDICINE | 2009年 / 1卷
基金：
加拿大健康研究院;
关键词：
Risk Information; Public Engagement; Genomic Medicine; National Human Genome Research Institute; Genetic Risk Information;
D O I：
10.1186/gm25
中图分类号：
Q3 [遗传学];
学科分类号：
071007 ; 090102 ;
摘要：
Advances in human genomics are ushering in a new era of predictive, preventative and personalized approaches to medicine. However, as the integration of genomic medicine progresses, the health community has a responsibility to communicate to the public the risks and challenges of genetic information. A possible knowledge transfer framework is outlined as a means to bridge the practical uses of genetics within various ethical, social and economic contexts. Tools and resources are needed to help clinicians understand genetic risks and help them inform the public appropriately and effectively.
引用
收藏
页数：4
相关论文
共 16 条
  • [1] Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement
    Burgess, Michael
    O'Doherty, Kieran
    Secko, David
    [J]. PERSONALIZED MEDICINE, 2008, 5 (03) : 285 - 296
  • [2] Research ethics recommendations for whole-genome research: Consensus statement
    Caulfield, Timothy
    McGuire, Amy L.
    Cho, Mildred
    Buchanan, Janet A.
    Burgess, Michael M.
    Danilczyk, Ursula
    Diaz, Christina M.
    Fryer-Edwards, Kelly
    Green, Shane K.
    Hodosh, Marc A.
    Juengst, Eric T.
    Kaye, Jane
    Kedes, Laurence
    Knoppers, Bartha Maria
    Lemmens, Trudo
    Meslin, Eric M.
    Murphy, Juli
    Nussbaum, Robert L.
    Otlowski, Margaret
    Pullman, Daryl
    Ray, Peter N.
    Sugarman, Jeremy
    Timmons, Michael
    [J]. PLOS BIOLOGY, 2008, 6 (03): : 430 - 435
  • [3] CDC National Office of Public Health Genomics, 2008, EV GEN APPL PRACT PR
  • [4] 'Grand challenges' in the translation of genomics to human health
    Ginsburg, Geoffrey S.
    [J]. EUROPEAN JOURNAL OF HUMAN GENETICS, 2008, 16 (08) : 873 - 874
  • [5] Genomic profiling to promote a healthy lifestyle: not ready for prime time
    Haga, SB
    Khoury, MJ
    Burke, W
    [J]. NATURE GENETICS, 2003, 34 (04) : 347 - 350
  • [6] ASHG statement on direct-to-consumer genetic testing in the United States
    Hudson, Kathy
    Javitt, Gail
    Burke, Wylie
    Byers, Peter
    [J]. OBSTETRICS AND GYNECOLOGY, 2007, 110 (06) : 1392 - 1395
  • [7] The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention?
    Khoury, Muin J.
    Gwinn, Marta
    Yoon, Paula W.
    Dowling, Nicole
    Moore, Cynthia A.
    Bradley, Linda
    [J]. GENETICS IN MEDICINE, 2007, 9 (10) : 665 - 674
  • [8] Landry R, 2008, KNOWLEDGE TRANSFER V, P1
  • [9] Putting science over supposition in the arena of personalized genomics
    McBride, Colleen M.
    Alford, Sharon Hensley
    Reid, Robert J.
    Larson, Eric B.
    Baxevanis, Andreas D.
    Brody, Lawrence C.
    [J]. NATURE GENETICS, 2008, 40 (08) : 939 - 942
  • [10] McCarthy Veach P., 2001, GENET COUNSEL, V10, P97
12