Quality of Life and Technology: Impact on Children and Families With Diabetes

被引:45
作者
Hirose, Masakazu [1 ,2 ]
Beverly, Elizabeth A. [1 ,2 ]
Weinger, Katie [1 ,2 ]
机构
[1] Joslin Diabet Ctr, Boston, MA 02215 USA
[2] Harvard Univ, Sch Med, Boston, MA USA
基金
美国国家卫生研究院;
关键词
Adolescents; Children; Quality of life; Type; 1; diabetes; Continuous glucose monitoring; Continuous subcutaneous insulin infusion; Insulin pump; Technology; SUBCUTANEOUS INSULIN INFUSION; MULTIPLE DAILY INJECTIONS; RANDOMIZED CONTROLLED-TRIAL; GLUCOSE MONITORING-SYSTEM; PATIENT-REPORTED OUTCOMES; PUMP THERAPY; METABOLIC-CONTROL; GLYCEMIC CONTROL; YOUNG-CHILDREN; SELF-MANAGEMENT;
D O I
10.1007/s11892-012-0313-4
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Ensuring quality of life (QOL) while maintaining glycemic control within targets is an important challenge in type 1 and type 2 diabetes treatment. For children with diabetes, QOL includes enjoying meals, feeling safe in school, and perceiving positive, supportive relationships with parents, siblings, and friends. Yet many treatment-related and psychosocial barriers can interfere with a child's QOL and their ability to manage diabetes effectively. Diabetes management also imposes considerable lifestyle demands that are difficult and often frustrating for children to negotiate at a young age. Recent advances in diabetes medications and technologies have improved glycemic control in children with diabetes. Two widely used technologies are the insulin pump and continuous glucose monitoring (CGM) system. These technologies provide patients with more flexibility in their daily life and information about glucose fluctuations. Several studies report improvements in glycemic control in children with type 1 diabetes using the insulin pump or sensor-augmented pump therapy. Importantly, these technologies may impact QOL for children and families with diabetes, although they are rarely used or studied in the treatment of children with type 2 diabetes. Further, emerging closed loop and web- and phone-based technologies have great potential for supporting diabetes self-management and perhaps QOL. A deeper understanding and appreciation of the impact of diabetes technology on children's and parents' QOL is critical for both the medical and psychological care of diabetes. Thus, the purpose of this review is to discuss the impact of new diabetes technologies on QOL in children, adolescents and families with type 1 diabetes.
引用
收藏
页码:711 / 720
页数:10
相关论文
共 113 条
[1]   Incorporating the patient's perspective into drug development and communication: An ad hoc task force report of the patient-reported outcomes (PRO) harmonization group meeting at the Food and Drug Administration, February 16, 2001 [J].
Acquadro, C ;
Berzon, R ;
Dubois, D ;
Leidy, NK ;
Marquis, P ;
Revicki, D ;
Rothman, M .
VALUE IN HEALTH, 2003, 6 (05) :522-531
[2]   Experiences of children/young people and their parents, using insulin pump therapy for the management of type 1 diabetes: qualitative review [J].
Alsaleh, F. M. ;
Smith, F. J. ;
Taylor, K. M. .
JOURNAL OF CLINICAL PHARMACY AND THERAPEUTICS, 2012, 37 (02) :140-147
[3]   Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes [J].
Anderson, BJ ;
Vangsness, L ;
Connell, A ;
Butler, D ;
Goebel-Fabbri, A ;
Laffel, LMB .
DIABETIC MEDICINE, 2002, 19 (08) :635-642
[4]  
ANDERSON BJ, 1991, ADVANCES IN CHILD HEALTH PSYCHOLOGY, P167
[5]   INFLUENCING THE ATTITUDES OF MEDICAL-STUDENTS TOWARD DIABETES - RESULTS OF A CONTROLLED-STUDY [J].
ANDERSON, RM ;
DONNELLY, MB ;
GORENFLO, DW ;
FUNNELL, MM ;
SHEETS, KJ .
DIABETES CARE, 1993, 16 (02) :503-505
[6]  
[Anonymous], 2006, PEDIAT DIABETES, V7, P32
[7]   Systematic literature review: quality of life associated with insulin pump use in Type 1 diabetes [J].
Barnard, K. D. ;
Lloyd, C. E. ;
Skinner, T. C. .
DIABETIC MEDICINE, 2007, 24 (06) :607-617
[8]   Brief report: Disordered eating and psychosocial factors in adolescent females with type I diabetes mellitus [J].
Battaglia, Marissa R. ;
Alemzadeh, Ramin ;
Katte, Heidi ;
Hall, Pamela L. ;
Perlmuter, Lawrence C. .
JOURNAL OF PEDIATRIC PSYCHOLOGY, 2006, 31 (06) :552-556
[9]   Quality-of-Life Measures in Children and Adults With Type 1 Diabetes Juvenile Diabetes Research Foundation Continuous Glucose Monitoring randomized trial [J].
Beck, Roy W. ;
Lawrence, Jean M. ;
Laffel, Lori ;
Wysocki, Tim ;
Xing, Dongyuan ;
Huang, Elbert S. ;
Ives, Brett ;
Kollman, Craig ;
Ruedy, Katrina J. ;
Tamborlane, William V. .
DIABETES CARE, 2010, 33 (10) :2175-2177
[10]   FREQUENCY OF DIABETIC-KETOACIDOSIS AND HYPOGLYCEMIC COMA DURING TREATMENT WITH CONTINUOUS SUBCUTANEOUS INSULIN INFUSION - AUDIT OF MEDICAL-CARE [J].
BENDING, JJ ;
PICKUP, JC ;
KEEN, H .
AMERICAN JOURNAL OF MEDICINE, 1985, 79 (06) :685-691