Patients' Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer

被引:13
作者
Checklin, Martin [1 ]
Bain, Jessica [1 ]
Bath, Lucy [1 ]
Lethbridge, Kate [1 ]
机构
[1] Epworth Healthcare, Epworth Rehabil & Mental Hlth, Speech Pathol & Dietet, 32 Erin St, Richmond, Vic 3121, Australia
关键词
Patients' perspectives; Rehabilitation; Dysphagia; Head and neck cancer; Oncology; Deglutition and deglutition disorders; NUTRITION IMPACT SYMPTOMS; SURVIVORS; PAIN;
D O I
10.1007/s00455-019-10077-y
中图分类号
R76 [耳鼻咽喉科学];
学科分类号
100213 ;
摘要
Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients' perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients' perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.
引用
收藏
页码:702 / 716
页数:15
相关论文
共 27 条
[1]  
Braun V, 2006, Qualitative Research in Psychology, V3, P77, DOI [DOI 10.1191/1478088706QP063OA, 10.1191/1478088706qp063oa, DOI 10.1080/14780887.2020.1769238]
[2]   The life experience of nutrition impact symptoms during treatment for head and neck cancer patients: a systematic review and meta-synthesis [J].
Bressan, Valentina ;
Bagnasco, Annamaria ;
Aleo, Giuseppe ;
Catania, Gianluca ;
Zanini, Milko P. ;
Timmins, Fiona ;
Sasso, Loredana .
SUPPORTIVE CARE IN CANCER, 2017, 25 (05) :1699-1712
[3]   Pretreatment Information on Dysphagia: Exploring the Views of Head and Neck Cancer Patients [J].
Brockbank, Sally ;
Miller, Nicholas ;
Owen, Sarah ;
Patterson, Joanne M. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2015, 49 (01) :90-98
[4]  
Chaplin JM, 1999, HEAD NECK-J SCI SPEC, V21, P531, DOI 10.1002/(SICI)1097-0347(199909)21:6<531::AID-HED6>3.0.CO
[5]  
2-M
[6]   Patient Perception of Speech Outcomes: The Relationship Between Clinical Measures and Self-Perception of Speech Function Following Surgical Treatment for Oral Cancer [J].
Constantinescu, Gabriela ;
Rieger, Jana ;
Winget, Marcy ;
Paulsen, Catherine ;
Seikaly, Hadi .
AMERICAN JOURNAL OF SPEECH-LANGUAGE PATHOLOGY, 2017, 26 (02) :241-247
[7]   A systematic review of interventions for eating and drinking problems following treatment for head and neck cancer suggests a need to look beyond swallowing and trismus [J].
Cousins, Nadine ;
MacAulay, Fiona ;
Lang, Heidi ;
MacGillivray, Steve ;
Wells, Mary .
ORAL ONCOLOGY, 2013, 49 (05) :387-400
[8]   Physical and psychosocial correlates of head and neck cancer: A review of the literature [J].
De Boer, MF ;
McCormick, LK ;
Pruyn, JFA ;
Ryckman, RM ;
van den Borne, BW .
OTOLARYNGOLOGY-HEAD AND NECK SURGERY, 1999, 120 (03) :427-436
[9]   The eating experience after treatment for head and neck cancer: A review of the literature [J].
Ganzer, Heidi ;
Touger-Decker, Riva ;
Byham-Gray, Laura ;
Murphy, Barbara A. ;
Epstein, Joel B. .
ORAL ONCOLOGY, 2015, 51 (07) :634-642
[10]   How many interviews are enough? An experiment with data saturation and variability [J].
Guest, Greg ;
Bunce, Arwen ;
Johnson, Laura .
FIELD METHODS, 2006, 18 (01) :59-82