The long-term health-related quality of life in children treated for burns as infants 5-9 years earlier

被引:16
作者
Laitakari, Elina [1 ,2 ]
Koljonen, Virve [3 ]
Pyorala, Sari [2 ]
Rintala, Risto [2 ]
Roine, Risto P. [4 ,5 ]
Sintonen, Harri [6 ]
机构
[1] Kanta Hame Cent Hosp, Dept Pediat Surg, Hameenlinna 13530, Finland
[2] Helsinki Univ Hosp, Childrens Hosp, Dept Pediat Surg, Helsinki, Finland
[3] Helsinki Univ Hosp, Dept Plast Surg, Helsinki, Finland
[4] Helsinki & Uusimaa Hosp Dist, Adm Res & Dev, Helsinki, Finland
[5] Univ Eastern Finland, Res Ctr Comparat Effectiveness & Patient Safety, Dept Hlth & Social Management, Kuopio, Finland
[6] Univ Helsinki, Dept Publ Hlth, Hjelt Inst, Helsinki, Finland
关键词
Health-related quality of life; Pediatric burns; Children; Infant; POSTTRAUMATIC-STRESS; ADOLESCENTS; ADJUSTMENT; INJURIES; PARENTS; TRAUMA; IMPACT; CARE; EPIDEMIOLOGY; PERFORMANCE;
D O I
10.1016/j.burns.2015.02.005
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
The long-term outcome after infant burn was queried 5-9 years after the initial accident. All participants had been treated for burn in Children's Hospital, Helsinki, Finland, before the age of 1 year. We hypothesized that the health-related quality of life (HRQoL) in young burn survivors may be impaired compared to healthy age Matched peers. The health-related quality of life of 126 infant burned patients with a mean total body surface area (TBSA) of 3.5% was queried with the standardized and validated 17D questionnaire. The HRQoL of the respondents was compared to that of a representative sample of the general age-standardized population. A total of 44(35%) children with a mean age of 7 years responded, and 64% of them were male. The median time from trauma was 6.3 years. Burn related features, age at burn time, burn size and site, and the treatment given were similar in the respondents group and all children approached. The mean HRQoL score of the respondents was better than that of the control population (p < 0.05). Comparison of the 17D profiles of the patients having been treated as inpatients or outpatients showed that those treated on an outpatient basis had better scores on the dimensions of speech, breathing, and friends (p < 0.05). The 17D profiles of patients with scalds or contact burns were similar. The perceived and expressed long-term HRQoL in the burned children was good, and on some dimensions (sleeping, learning, discomfort and symptoms, breathing, depression, and appearance) even better, than that of the control population. (C) 2015 Elsevier Ltd and ISBI. All rights reserved.
引用
收藏
页码:1186 / 1192
页数:7
相关论文
共 43 条
  • [1] American Burn Association, 2012, NAT BURN REP VERS 8
  • [2] Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D)
    Apajasalo, M
    Rautonen, J
    Holmberg, C
    Sinkkonen, J
    Aalberg, V
    Pihko, H
    Siimes, MA
    Kaitila, I
    Makela, A
    Erkkila, K
    Sintonen, H
    [J]. QUALITY OF LIFE RESEARCH, 1996, 5 (06) : 532 - 538
  • [3] Quality of life in early adolescence: A sixteen-dimensional health-related measure (16D)
    Apajasalo, M
    Sintonen, H
    Holmberg, C
    Sinkkonen, J
    Aalberg, V
    Pihko, H
    Siimes, MA
    Kaitila, I
    Makela, A
    Rantakari, K
    Anttila, R
    Rautonen, J
    [J]. QUALITY OF LIFE RESEARCH, 1996, 5 (02) : 205 - 211
  • [4] Health-Related Quality of Life of Children with Specific Language Impairment Aged 8-11
    Arkkila, E.
    Rasanen, P.
    Roine, R. P.
    Sintonen, H.
    Saar, V.
    Vilkman, E.
    [J]. FOLIA PHONIATRICA ET LOGOPAEDICA, 2011, 63 (01) : 27 - 35
  • [5] Psychological consequences of pediatric burns from a child and family perspective: A review of the empirical literature
    Bakker, Anne
    Maertens, Koen J. P.
    Van Son, Maarten J. M.
    Van Loey, Nancy E. E.
    [J]. CLINICAL PSYCHOLOGY REVIEW, 2013, 33 (03) : 361 - 371
  • [6] Outcomes of Outpatient Management of Pediatric Burns
    Brown, Matthew
    Coffee, Tammy
    Adenuga, Paul
    Yowler, Charles J.
    [J]. JOURNAL OF BURN CARE & RESEARCH, 2014, 35 (05) : 388 - 394
  • [7] Patterns of burn injury in the preambulatory infant
    Burlinson, Clare E. G.
    Wood, Fiona M.
    Rea, Suzanne M.
    [J]. BURNS, 2009, 35 (01) : 118 - 122
  • [8] Prevalence, comorbidity and course of trauma reactions in young burn-injured children
    De Young, Alexandra C.
    Kenardy, Justin A.
    Cobham, Vanessa E.
    Kimble, Roy
    [J]. JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY, 2012, 53 (01) : 56 - 63
  • [9] Trauma in Early Childhood: A Neglected Population
    De Young, Alexandra C.
    Kenardy, Justin A.
    Cobham, Vanessa E.
    [J]. CLINICAL CHILD AND FAMILY PSYCHOLOGY REVIEW, 2011, 14 (03) : 231 - 250
  • [10] Can parents rate their child's health-related quality of life? Results of a systematic review
    Eiser, C
    Morse, R
    [J]. QUALITY OF LIFE RESEARCH, 2001, 10 (04) : 347 - 357