Understanding the Needs of Colorectal Cancer Patients during the Pre-diagnosis Phase

被引：8

作者：

Wiljer, David ^{[1
,2
]}

Walton, Tara ^{[3
]}

Gilbert, Julie ^{[4
,5
]}

Boucher, Amy ^{[6
]}

Ellis, Peter M. ^{[7
,8
]}

Schiff, Susan ^{[9
]}

Sellick, Scott M. ^{[6
]}

Simunovic, Marko ^{[10
]}

Kennedy, Erin ^{[11
,12
]}

Urowitz, Sara ^{[2
,13
]}

机构：

[1] Ctr Addict & Mental Hlth, Off Educ, Toronto, ON M5S 1S2, Canada

[2] Univ Toronto, Dept Psychiat, Toronto, ON M5S 3E6, Canada

[3] Princess Margaret Hosp, Oncol Educ Program, Univ Hlth Network, Toronto, ON M4X 1K9, Canada

[4] Canc Care Ontario, Res & Evaluat, Toronto, ON, Canada

[5] Univ Toronto, Dept Hlth Policy Management & Evaluat, Fac Med, Toronto, ON M5S 3E6, Canada

[6] Thunder Bay Reg Hlth Sci Ctr, Thunder Bay, ON, Canada

[7] McMaster Univ, Dept Oncol Clin Epidemiol, Juravinski Canc Ctr, Hamilton, ON, Canada

[8] McMaster Univ, Dept Biostat, Juravinski Canc Ctr, Hamilton, ON, Canada

[9] Juravinski Canc Ctr, Support Canc Care Res Unit, Hamilton, ON, Canada

[10] McMaster Univ, Dept Surg, Juravinski Canc Ctr, Hamilton, ON L8S 4L8, Canada

[11] Univ Toronto, Dept Surg & Hlth Policy Management & Evaluat, Toronto, ON M5S 3E6, Canada

[12] Zane Cohen Ctr Digest Dis Res, Toronto, ON, Canada

[13] Princess Margaret Hosp, Univ Hlth Network, Educ Informat & ELLICSR Hlth Wellness & Canc Surv, Toronto, ON M4X 1K9, Canada

来源：

JOURNAL OF CANCER EDUCATION | 2013年 / 28卷 / 03期

关键词：

Colorectal cancer; Patient education; Diagnosis; Information; Patient needs; POPULATION-BASED SURVEY; INFORMATION NEEDS; PREFERENCES; SEEKING; BREAST;

D O I：

10.1007/s13187-013-0465-1

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Patients with colorectal cancer (CRC) face a number of challenges leading up to diagnosis; however, research is limited regarding their specific needs during the pre-diagnosis period. A multicenter cross-sectional survey was conducted to elicit information about the CRC experience during the pre-diagnosis phase. Across the three sites, 104 eligible patients were approached, and 82 patients completed the survey, for a total response rate of 78.9 %. The needs most identified by participants during the pre-diagnosis period were informational (31.6 %) and emotional (20.3 %) needs; social needs were rated as the least important need for these patients (7 %). The majority (84.0 %) reported that these needs were met. Participants reported feeling shocked or overwhelmed on learning of their diagnosis (57.1 %) and high levels of anxiety during this time (40.0 %). The majority (77.9 %) of participants reported that they were not directed to any resources to help address their anxiety. Informational and emotional needs are identified as the most important needs during the pre-diagnosis phase, and for most these needs are being met; however, some participants are experiencing high levels of anxiety without access to appropriate resources. Further work is required to understand the optimal mechanisms to address identified needs during this pre-diagnosis period and to assess the potential benefits and costs of addressing these needs.

引用

页码：402 / 407

页数：6

共 21 条

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