The Use of Focus Groups to Characterize Symptoms in Persons With Multiple Sclerosis

被引:13
|
作者
Newland, Pamela K. [1 ,2 ]
Thomas, Florian P. [3 ,4 ]
Riley, Marguerite [2 ]
Flick, Louise H. [5 ]
Fearing, Arleen [2 ]
机构
[1] Natl Inst Nursing Res NRSA, NIH, Edwardsville, IL USA
[2] So Illinois Univ, Edwardsville, IL 62026 USA
[3] St Louis Univ, Dept Neurol & Psychiat, St Louis, MO 63103 USA
[4] St Louis Univ, Natl MS Soc Multiple Sclerosis Ctr, St Louis, MO 63103 USA
[5] St Louis Univ, Sch Publ Hlth, St Louis, MO 63103 USA
关键词
focus groups; multiple sclerosis; qualitative research; symptoms; QUALITY-OF-LIFE; ACUTE MYOCARDIAL-INFARCTION; COGNITIVE IMPAIRMENT; PAIN; WOMEN; DEPRESSION; CLUSTERS; FATIGUE; HEAT;
D O I
10.1097/JNN.0b013e318268308b
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Multiple sclerosis is a chronic neurological disease with a myriad of symptoms. Because most work has been quantitative, it is important to capture symptoms as described by patients who experience them, using a qualitative approach. The purpose of our study was to describe and identify symptoms, with emphasis on co-occurrence, using focus groups. Three focus groups were conducted (N = 16) with relapsing-remitting multiple sclerosis patients. Common symptoms, described as both singular and co-occurring, were problems with balance, cognition, vision, and heat intolerance. These findings augment past characterizations of symptoms experienced in persons with relapsing-remitting multiple sclerosis and provide evidence for future studies.
引用
收藏
页码:351 / 357
页数:7
相关论文
共 50 条
  • [41] Anxiety in multiple sclerosis is related to depressive symptoms and cognitive complaints
    Wallis, Olga
    Bol, Yvonne
    Kohler, Sebastian
    van Heugten, Caroline
    ACTA NEUROLOGICA SCANDINAVICA, 2020, 141 (03): : 212 - 218
  • [42] The Presence of Symptoms With Comorbid Conditions in Individuals With Multiple Sclerosis (MS)
    Newland, Pamela K.
    Lorenz, Rebecca
    Budhathoki, Chakra
    Jensen, Mark P.
    CLINICAL NURSING RESEARCH, 2016, 25 (05) : 532 - 548
  • [43] Emotion dysregulation in multiple sclerosis: Impact on symptoms of depression and anxiety
    Prakash, R. S.
    Schirda, B.
    Valentine, T. R.
    Crotty, M.
    Nicholas, J. A.
    MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2019, 36
  • [44] Poor sleep and multiple sclerosis: associations with symptoms of multiple sclerosis and quality of life
    Laslett, Laura L.
    Honan, Cynthia
    Turner, Jason A.
    Dagnew, Baye
    Campbell, Julie A.
    Gill, Tiffany K.
    Appleton, Sarah
    Blizzard, Leigh
    Taylor, Bruce, V
    van der Mei, Ingrid
    JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2022, 93 (11) : 1162 - 1165
  • [45] Comorbidities contribute substantially to the severity of common multiple sclerosis symptoms
    Lo, Lara Marie Pangan
    Taylor, Bruce, V
    Winzenberg, Tania
    Palmer, Andrew J.
    Blizzard, Leigh
    van der Mei, Ingrid
    JOURNAL OF NEUROLOGY, 2021, 268 (02) : 559 - 568
  • [46] Characterizing fatigue phenotypes with other symptoms and clinically relevant outcomes among people with multiple sclerosis
    Plow, Matthew
    Gunzler, Douglas D.
    Chang, Julia H. C.
    QUALITY OF LIFE RESEARCH, 2023, 32 (01) : 151 - 160
  • [47] The Relationship Among Multiple Sclerosis-Related Symptoms, Sleep Quality, and Sleep Hygiene Behaviors
    Newland, Pamela
    Lorenz, Rebecca A.
    Smith, Judith M.
    Dean, Emily
    Newland, John
    Cavazos, Patricia
    JOURNAL OF NEUROSCIENCE NURSING, 2019, 51 (01) : 37 - 42
  • [48] Factors influencing the use of energy conservation strategies by persons with multiple sclerosis
    Holberg, Christa
    Finlayson, Marcia
    AMERICAN JOURNAL OF OCCUPATIONAL THERAPY, 2007, 61 (01) : 96 - 107
  • [49] Do Multiple Sclerosis Symptoms Moderate the Relationship Between Self-Efficacy and Physical Activity in People With Multiple Sclerosis?
    Casey, Blathin
    Uszynski, Marcin
    Hayes, Sara
    Motl, Robert
    Gallagher, Stephen
    Coote, Susan
    REHABILITATION PSYCHOLOGY, 2018, 63 (01) : 104 - 110
  • [50] Factors Contributing to the Development of Neuropsychiatric Manifestations in Persons With Multiple Sclerosis: A Systematic Review
    Sangster, Elizabeth
    Lanka, Nidhi
    Acharya, Prakash
    Virani, Shikha
    Afreen, Sumayya
    Perthiani, Arvin
    Nassar, Sondos T.
    CUREUS JOURNAL OF MEDICAL SCIENCE, 2024, 16 (08)