Cohort Profile: The Ontario HIV Treatment Network Cohort Study (OCS)

被引：60

作者：

Rourke, Sean B. ^{[1
,2
,3
,4
]}

Gardner, Sandra ^{[1
,2
]}

Burchell, Ann N. ^{[1
,2
]}

Raboud, Janet ^{[2
,5
]}

Rueda, Sergio ^{[1
]}

Bayoumi, Ahmed M. ^{[2
,3
]}

Loutfy, Mona ^{[2
,6
]}

Cooper, Curtis ^{[7
,8
]}

Smieja, Marek ^{[9
]}

Taylor, Darien ^{[10
]}

DiPede, Tony ^{[1
]}

Wobeser, Wendy ^{[11
]}

Major, Carol ^{[1
]}

Waring, Virginia ^{[1
]}

Fisher, Mark ^{[1
]}

Cairney, John ^{[12
]}

Mittmann, Nicole ^{[2
,13
]}

Salit, Irving E. ^{[2
,5
]}

Crouzat, Fred ^{[6
]}

Gough, Kevin ^{[2
,3
]}

Ralph, Edward ^{[14
]}

Sandre, Roger ^{[15
]}

Kilby, Don ^{[7
]}

Rachlis, Anita ^{[2
,13
]}

机构：

[1] Ontario HIV Treatment Network, Toronto, ON M4T 1X3, Canada

[2] Univ Toronto, Toronto, ON, Canada

[3] St Michaels Hosp, Toronto, ON M5B 1W8, Canada

[4] CIHR Ctr REACH HIV AIDS, Toronto, ON, Canada

[5] Univ Hlth Network, Toronto, ON, Canada

[6] Maple Leaf Med Ctr, Toronto, ON, Canada

[7] Univ Ottawa, Ottawa, ON, Canada

[8] Ottawa Hosp, Ottawa, ON, Canada

[9] Hamilton Hlth Sci, Hamilton, ON, Canada

[10] Canadian AIDS Treatment Informat Exchange, Toronto, ON, Canada

[11] Queens Univ, Kingston, ON, Canada

[12] McMaster Univ, Hamilton, ON, Canada

[13] Sunnybrook Hlth Sci Ctr, Toronto, ON M4N 3M5, Canada

[14] St Josephs Hosp, London, ON N6A 4V2, Canada

[15] Sudbury Reg Hosp, Sudbury, ON, Canada

来源：

INTERNATIONAL JOURNAL OF EPIDEMIOLOGY | 2013年 / 42卷 / 02期

基金：

加拿大健康研究院;

关键词：

STIGMA; PEOPLE; RELIABILITY; VALIDITY; OUTCOMES;

D O I：

10.1093/ije/dyr230

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

The Ontario HIV Treatment Network Cohort Study (OCS) is an observational, open dynamic cohort of people who are receiving medical care for human immunodeficiency virus (HIV) infection in Ontario, Canada. Established in the mid-1990s, the OCS has its roots in AIDS activists' demands for research that would improve the quality of life of people living with HIV while respecting their privacy. It is a collaborative and community-driven study, including a Governance Committee made up of people with HIV and other stakeholders that evaluates analysis project proposals for community relevance and ethics. From 1995 to 2010, a total of 5644 participants were enrolled and 27 720 person-years of observation were accumulated; follow-up will continue until at least 2015. In the initial years of study, the focus was on clinical data from medical chart reviews. It has since evolved into a comprehensive study that collects extensive de-identified information on clinical, laboratory and psychosocial and behavioural measures based on medical chart abstractions, interviews using a standardized questionnaire and linkage with external administrative health databases in Ontario. Interested collaborators are encouraged to submit analysis project proposals as instructed on the study website (www.ohtncohortstudy.ca).

引用

页码：402 / 411

页数：10

共 38 条

[1] Ethnicity and Gender Differences in Lipodystrophy of HIV-Positive Individuals Taking Antiretroviral Therapy in Ontario, Canada
Andany, Nisha
Raboud, Janet M.
Walmsley, Sharon
Diong, Christina
Rourke, Sean B.
Rueda, Sergio
Rachlis, Anita
Wobeser, Wendy
MacArthur, Rodger D.
Binder, Louise
Rosenes, Ron
Loutfy, Mona R.
[J]. HIV CLINICAL TRIALS, 2011, 12 (02): : 89 - 103
[2] [Anonymous], 2002, USERS MANUAL SF 12V2
[3] [Anonymous], HIV AIDS CAN SURV RE
[4] [Anonymous], REPORT HIV AIDS ONTA
[5] Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale
Berger, BE
Ferrans, CE
Lashley, FR
[J]. RESEARCH IN NURSING & HEALTH, 2001, 24 (06) : 518 - 529
[6] Brandt J., 2001, Psychol Assess Resour
[7] Brooks R., 2003, MEASUREMENT VALUATIO
[8] Measurement of stigma in people with HIV: A reexamination of the HIV stigma scale
Bunn, Janice Yanushka
Solomon, Sondra E.
Miller, Carol
Forehand, Rex
[J]. AIDS EDUCATION AND PREVENTION, 2007, 19 (03) : 198 - 208
[9] You want to measure coping but your protocol's too long: Consider the brief COPE
Carver, CS
[J]. INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, 1997, 4 (01) : 92 - 100
[10] Self-reported adherence to antiretroviral medications among participants in HIV clinical trials: the AACTG Adherence Instruments
Chesney, MA
Ickovics, JR
Chambers, DB
Gifford, AL
Neidig, J
Zwickl, B
Wu, AW
[J]. AIDS CARE-PSYCHOLOGICAL AND SOCIO-MEDICAL ASPECTS OF AIDS/HIV, 2000, 12 (03): : 255 - 266

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