Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis

被引:11
|
作者
Hollin, Gregory [1 ]
Pearce, Warren [2 ]
机构
[1] Univ Leeds, Sch Sociol & Social Policy, Leeds LS2 9JT, W Yorkshire, England
[2] Univ Sheffield, Dept Sociol Studies, iHuman, Sheffield S10 2TU, S Yorkshire, England
基金
英国经济与社会研究理事会;
关键词
Public engagement; Autism advocacy; Qualitative research; Ethics; SCIENCE; KNOWLEDGE; IDENTITY; POLITICS; VOICES;
D O I
10.1007/s10803-018-3783-7
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.
引用
收藏
页码:809 / 818
页数:10
相关论文
共 50 条
  • [21] Public engagement on global health challenges
    Emma RM Cohen
    Hassan Masum
    Kathryn Berndtson
    Vicki Saunders
    Tom Hadfield
    Dilzayn Panjwani
    Deepa L Persad
    Gunjeet S Minhas
    Abdallah S Daar
    Jerome A Singh
    Peter A Singer
    BMC Public Health, 8
  • [22] Health and medical research funding agencies' promotion of public engagement within research: a qualitative interview study exploring the United Kingdom context
    van Bekkum, Jennifer E.
    Fergie, Gillian M.
    Hilton, Shona
    HEALTH RESEARCH POLICY AND SYSTEMS, 2016, 14
  • [23] AI IN PUBLIC RELATIONS: CHALLENGES AND OPPORTUNITIES
    Matusova, Jana Galera
    Naciniakova, Katarina
    MARKETING AND MEDIA IDENTITY: AI-THE FUTURE OF TODAY, 2023, 2023, : 114 - 121
  • [24] Evaluating effective public engagement: local stories from a global network of IPCC scientists
    Pidcock, Rosalind
    Heath, Kate
    Messling, Lydia
    Wang, Susie
    Pirani, Anna
    Connors, Sarah
    Corner, Adam
    Shaw, Christopher
    Gomis, Melissa
    CLIMATIC CHANGE, 2021, 168 (3-4)
  • [25] Scientists need professional development to practice meaningful public engagement
    Stofer, Kathryn A.
    Hanson, David
    Hecht, Kirsten
    JOURNAL OF RESPONSIBLE INNOVATION, 2023, 10 (01)
  • [26] Safe and Sound? Scientists' Understandings of Public Engagement in Emerging Biotechnologies
    Braun, Matthias
    Starkbaum, Johannes
    Dabrock, Peter
    PLOS ONE, 2015, 10 (12):
  • [27] Exploring scientists? perceptions of citizen science for public engagement with science
    Collins, Stephanie A.
    Sullivan, Miriam
    Bray, Heather J.
    JCOM-JOURNAL OF SCIENCE COMMUNICATION, 2022, 21 (07):
  • [28] An Appraisal of Social Network Theory and Analysis as Applied to Public Health: Challenges and Opportunities
    Valente, Thomas W.
    Pitts, Stephanie R.
    ANNUAL REVIEW OF PUBLIC HEALTH, VOL 38, 2017, 38 : 103 - 118
  • [29] Opportunities, approaches and challenges to the engagement of citizens in filling small water body data gaps
    Kelly-Quinn, M.
    Biggs, J. N.
    Brooks, S.
    Fortuno, P.
    Hegarty, S.
    Jones, J., I
    Regan, F.
    HYDROBIOLOGIA, 2023, 850 (15) : 3419 - 3439
  • [30] Meta-synthesis of qualitative research: the challenges and opportunities
    Mohammed A. Mohammed
    Rebekah J. Moles
    Timothy F. Chen
    International Journal of Clinical Pharmacy, 2016, 38 : 695 - 704