Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis

被引:11
作者
Hollin, Gregory [1 ]
Pearce, Warren [2 ]
机构
[1] Univ Leeds, Sch Sociol & Social Policy, Leeds LS2 9JT, W Yorkshire, England
[2] Univ Sheffield, Dept Sociol Studies, iHuman, Sheffield S10 2TU, S Yorkshire, England
基金
英国经济与社会研究理事会;
关键词
Public engagement; Autism advocacy; Qualitative research; Ethics; SCIENCE; KNOWLEDGE; IDENTITY; POLITICS; VOICES;
D O I
10.1007/s10803-018-3783-7
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
This article draws upon qualitative interviews in order to examine how UK based research psychologists understand public engagement activities and interactions with autistic advocates. Researchers describe public engagement as difficult and understand these difficulties as stemming from autistic impairments. In particular, it is reported that a heterogeneity of autism impairments means there is little agreement on the form research should take, while socio-communicative impairments make interactions difficult. Conversely, researchers describe autistic individuals as having the capacity to positively influence research. In this paper we discuss the nature of these claims and stress the need for autism-specific modes of engagement to be developed.
引用
收藏
页码:809 / 818
页数:10
相关论文
共 57 条
[41]   Bridging Autism, Science and Society: Moving Toward an Ethically Informed Approach to Autism Research [J].
Pellicano, Elizabeth ;
Stears, Marc .
AUTISM RESEARCH, 2011, 4 (04) :271-282
[42]  
Pielke R. A., 2007, The honest broker. Making sense of science in policy and politics
[43]   Organizing Authority in the Climate Change Debate: IPCC Controversies and the Management of Dialectical Tensions [J].
Porter, Amanda J. ;
Kuhn, Timothy R. ;
Nerlich, Brigitte .
ORGANIZATION STUDIES, 2018, 39 (07) :873-898
[44]  
Potter J., 2005, QUAL RES PSYCHOL, V2, P281, DOI [10.1191/1478088705qp045oa, DOI 10.1191/1478088705QP045OA]
[45]  
Rescher Nicholas., 1995, Pluralism: Against the Demand for Consensus
[46]   The voice of science: let's agree to disagree [J].
Sarewitz, Daniel .
NATURE, 2011, 478 (7367) :7-7
[47]  
Shakespeare Tom., 1995, Social Policy, V46, P22
[48]  
Silberman S, 2015, neurotribes: the legacy of autism and the future of neurodiversity
[49]  
Silverman C., 2012, UNDERSTANDING AUTISM
[50]  
Silverman Chloe., 2008, Biosocialities, Genetics and the Social Sciences: Making Biologies and Identities, P38