Predictors of caregiver burden in mothers of children with leukemia and cerebral palsy

被引:30
作者
Boztepe, Handan [1 ]
Cinar, Sevil [1 ]
Ay, Ayse [1 ]
Yildiz, Gizem Kerimoglu [2 ,4 ]
Kilic, Cengiz [3 ]
机构
[1] Hacettepe Univ, Fac Nursing, Dept Pediat Nursing, Ankara, Turkey
[2] Istanbul Univ, Florence Nightingale Nursing Fac, Dept Pediat Nursing, Istanbul, Turkey
[3] Hacettepe Univ, Dept Psychiat, Fac Med, Ankara, Turkey
[4] Hatay Mustafa Kemal Univ, Hatay Sch Hlth, Pediat Nursing Dept, Antakya, Turkey
关键词
caregiver burden; cerebral palsy; depression; leukemia; mother; QUALITY-OF-LIFE; ACUTE LYMPHOBLASTIC-LEUKEMIA; SOCIAL SUPPORT; PSYCHOLOGICAL DISTRESS; DEPRESSIVE SYMPTOMS; EMOTIONAL DISTRESS; CARE; CANCER; PARENTS; STRESS;
D O I
10.1080/07347332.2018.1489441
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
Objective: Caring for a sick child can lead to considerable burden in the caregiver. Comparative studies of burden in mothers of children with different types of disorders are rare. Methods: We assessed levels of and risk factors for burden in mothers of children with leukemia (n: 70) or with cerebral palsy (CP) (n: 69). Subjects were recruited from two hospitals in Ankara. Results: Levels of burden or depression were not different between groups. Burden was predicted by the presence of depression in the mother and severity of illness in both groups. In the leukemia group, mothers reported higher burden if the child was male or younger; no such relationship was observed in the CP group. Conclusion: Our results show that type of illness has an effect on levels of burden. Mothers of children with leukemia should receive more attention, especially if their child is male or younger, to take preventive measures against burden.
引用
收藏
页码:69 / 78
页数:10
相关论文
共 44 条
[1]   Parenting Stress Among Caregivers of Children With Bipolar Spectrum Disorders [J].
Algorta, Guillermo Perez ;
MacPherson, Heather A. ;
Youngstrom, Eric A. ;
Belt, Caroline C. ;
Arnold, L. Eugene ;
Frazier, Thomas W. ;
Taylor, H. Gerry ;
Birmaher, Boris ;
Horwitz, Sarah McCue ;
Findling, Robert L. ;
Fristad, Mary A. .
JOURNAL OF CLINICAL CHILD AND ADOLESCENT PSYCHOLOGY, 2018, 47 :S306-S320
[2]  
[Anonymous], 2008, J ANATOLIA NURSING H
[3]  
Atagun M.I., 2011, Psikiyatride Guncel Yaklasimlar, V3, P513, DOI DOI 10.5455/CAP.20110323
[4]   Salivary cortisol, stress, and health in primary caregivers (mothers) of children with cerebral palsy [J].
Bella, G. P. ;
Garcia, M. C. ;
Spadari-Bratfisch, R. C. .
PSYCHONEUROENDOCRINOLOGY, 2011, 36 (06) :834-842
[5]   Similarities amid the difference: Caregiving burden and adaptation outcomes in dyads of parents and their children with and without cerebral palsy [J].
Carona, C. ;
Crespo, C. ;
Canavarro, M. C. .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2013, 34 (03) :882-893
[6]   Depression and distress in caregivers of children with brain tumors undergoing treatment: psychosocial factors as moderators [J].
Choi, Eun Kyung ;
Yoon, Soo Jin ;
Kim, Jong-Heun ;
Park, Hyeon Jin ;
Kim, Joo Young ;
Yu, Eun-Seung .
PSYCHO-ONCOLOGY, 2016, 25 (05) :544-550
[7]   "Care That Matters": Family-Centered Care, Caregiving Burden, and Adaptation in Parents of Children With Cancer [J].
Crespo, Carla ;
Santos, Susana ;
Tavares, Ana ;
Salvador, Agata .
FAMILIES SYSTEMS & HEALTH, 2016, 34 (01) :31-40
[8]   Risk Factors of Caregiver Burden Among Patients with Alzheimer's Disease or Related Disorders: A Cross-Sectional Study [J].
Dauphinot, Virginie ;
Delphin-Combe, Floriane ;
Mouchoux, Christelle ;
Dorey, Aline ;
Bathsavanis, Anthony ;
Makaroff, Zaza ;
Rouch, Isabelle ;
Krolak-Salmon, Pierre .
JOURNAL OF ALZHEIMERS DISEASE, 2015, 44 (03) :907-916
[9]   Predicting depressive symptoms among the mothers of children with leukaemia: A caregiver stress model perspective [J].
Demirtepe-Saygili, Dilek ;
Bozo, Ozlem .
PSYCHOLOGY & HEALTH, 2011, 26 (05) :585-599
[10]   The Burden of Care and Quality of Life of Caregivers of Leukemia and Lymphoma Patients Following Peripheric Stem Cell Transplantation [J].
Deniz, Humeyra ;
Inci, Figen .
JOURNAL OF PSYCHOSOCIAL ONCOLOGY, 2015, 33 (03) :250-262