No one's discussing the elephant in the room: contemplating questions of research impact and benefit in Aboriginal and Torres Strait Islander Australian health research

被引:140
作者
Bainbridge, Roxanne [1 ]
Tsey, Komla [1 ]
McCalman, Janya [1 ]
Kinchin, Irina [1 ]
Saunders, Vicki [2 ]
Lui, Felecia Watkin [3 ]
Cadet-James, Yvonne [4 ]
Miller, Adrian [5 ]
Lawson, Kenny [6 ]
机构
[1] James Cook Univ, Cairns Inst, Cairns, Qld 4870, Australia
[2] James Cook Univ, Sch Nursing, Midwifery & Nutr, Townsville, Qld 4811, Australia
[3] James Cook Univ, Indigenous Ctr, Cairns, Qld 4870, Australia
[4] James Cook Univ, Indigenous Ctr, Townsville, Qld 4811, Australia
[5] Griffith Univ, Indigenous Res Unit, Nathan, Qld 4111, Australia
[6] James Cook Univ, Ctr Chron Dis Prevent, Cairns, Qld 4870, Australia
基金
澳大利亚研究理事会;
关键词
Aboriginal and Torres Strait Islander; Indigenous; Health; Research benefit; Research impact; Research translation; INDIGENOUS HEALTH; SYSTEMATIC SEARCH; IMPLEMENTATION; COMMUNITY; SERVICES;
D O I
10.1186/s12889-015-2052-3
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background: There remains a concern that Indigenous Australians have been over-researched without corresponding improvements in their health; this trend is applicable to most Indigenous populations globally. This debate article has a dual purpose: 1) to open a frank conversation about the value of research to Indigenous Australian populations; and 2) to stimulate ways of thinking about potential resolutions to the lack of progress made in the Indigenous research benefit debate. Discussion: Capturing the meaning of research benefit takes the form of ethical value-oriented methodological considerations in the decision-making processes of Indigenous research endeavours. Because research practices come from Western knowledge bases, attaining such positions in research means reconciling both Indigenous and Western knowledge systems to produce new methodologies that guide planning, evaluating and monitoring of research practices as necessary. Increasingly, more sophisticated performance measures have been implemented to ensure academic impact and benefits are captured. Assessing societal and other non-academic impacts and benefits however, has not been accorded corresponding attention. Research reform has only focussed on research translation in more recent years. The research impact debate must take account of the various standards of accountability (to whom), impact priorities (for whom), positive and negative impacts, and biases that operate in describing impact and measuring benefit. Summary: A perennial question in Indigenous research discourse is whether the abundance of research conducted; purportedly to improve health, is justified and benefits Indigenous people in ways that are meaningful and valued by them. Different research stakeholders have different conceptions of the value and nature of research, its conduct, what it should achieve and the kinds of benefits expected. We need to work collaboratively and listen more closely to the voice of Indigenous Australians to better understand, demonstrate and measure health research benefits. The authors conclude that as an imperative, a systematic benefit assessment strategy that includes identification of research priorities and planning, monitoring and evaluation components needs to be developed and implemented across research projects. In Indigenous health research, this will often mean adopting a benefit-led approach by changing the way research is done and preferencing alternative research methodologies. As a point of departure to improving impact and reaching mutually beneficial outcomes for researchers and partners in Indigenous health research, we need to routinise the assessment of benefit from outset of research as one of the standards toward which we work.
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页数:10
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