Patient-reported outcomes for the myelodysplastic syndromes: a new MDS-specific measure of quality of life

被引：24

作者：

Abel, Gregory A. ^{[1
,2
]}

Klaassen, Robert ^{[3
]}

Lee, Stephanie J. ^{[4
]}

Young, Nancy L. ^{[5
]}

Cannella, Laura ^{[6
,7
]}

Steensma, David P. ^{[2
]}

Efficace, Fabio ^{[6
,7
]}

机构：

[1] Dana Farber Canc Inst, Div Populat Sci, Dept Med Oncol, Boston, MA 02215 USA

[2] Dana Farber Canc Inst, Ctr Leukemia, Dept Med Oncol, Boston, MA 02215 USA

[3] Childrens Hosp Eastern Ontario, Dept Pediat, Ottawa, ON K1H 8L1, Canada

[4] Fred Hutchinson Canc Res Ctr, Div Clin Res, Seattle, WA 98104 USA

[5] Laurentian Univ, Sch Rural & Northern Hlth, Sudbury, ON P3E 2C6, Canada

[6] Italian Grp Adult Hematol Dis, Ctr Data, Rome, Italy

[7] Hlth Outcomes Res Unit, Rome, Italy

来源：

BLOOD | 2014年 / 123卷 / 03期

关键词：

D O I：

10.1182/blood-2013-11-540021

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：451 / 452

页数：2

共 10 条

[1]

Abel G, 2012, J CLIN ONCOL S, V30, p407s

[2] Methodological Standards and Patient-Centeredness in Comparative Effectiveness Research The PCORI Perspective [J].

Basch, Ethan ;

Aronson, Naomi ;

Berg, Alfred ;

Flum, David ;

Gabriel, Sherine ;

Goodman, Steven N. ;

Helfand, Mark ;

Ioannidis, John P. A. ;

Lauer, Michael ;

Meltzer, David ;

Mittman, Brian ;

Newhouse, Robin ;

Normand, Sharon-Lise ;

Schneeweiss, Sebastian ;

Slutsky, Jean ;

Tinetti, Mary ;

Yancy, Clyde .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2012, 307 (15) :1636-1640

[3]

Bowling A., 2001, MEASURING DIS, V2nd

[4] Reporting of Patient-Reported Outcomes in Randomized Trials The CONSORT PRO Extension [J].

Calvert, Melanie ;

Blazeby, Jane ;

Altman, Douglas G. ;

Revicki, Dennis A. ;

Moher, David ;

Brundage, Michael D. .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2013, 309 (08) :814-822

[5] Health-related quality of life and symptom assessment in patients with myelodysplastic syndromes [J].

Caocci, Giovanni ;

La Nasa, Giorgio ;

Efficace, Fabio .

EXPERT REVIEW OF HEMATOLOGY, 2009, 2 (01) :69-80

[6]

Efficace F, ANN ONCOL IN PRESS

[7] A review of measures of quality of life for children with chronic illness [J].

Eiser, C ;

Morse, R .

ARCHIVES OF DISEASE IN CHILDHOOD, 2001, 84 (03) :205-211

[8] Cognitive psychology and self-reports: Models and methods [J].

Jobe, JB .

QUALITY OF LIFE RESEARCH, 2003, 12 (03) :219-227

[9] Diagnosis and treatment of primary myelodysplastic syndromes in adults: recommendations from the European LeukemiaNet [J].

Malcovati, Luca ;

Hellstrom-Lindberg, Eva ;

Bowen, David ;

Ades, Lionel ;

Cermak, Jaroslav ;

del Canizo, Consuelo ;

Della Porta, Matteo G. ;

Fenaux, Pierre ;

Gattermann, Norbert ;

Germing, Ulrich ;

Jansen, Joop H. ;

Mittelman, Moshe ;

Mufti, Ghulam ;

Platzbecker, Uwe ;

Sanz, Guillermo F. ;

Selleslag, Dominik ;

Skov-Holm, Mette ;

Stauder, Reinhard ;

Symeonidis, Argiris ;

van de Loosdrecht, Arjan A. ;

de Witte, Theo ;

Cazzola, Mario .

BLOOD, 2013, 122 (17) :2943-2964

[10]

US Food and Drug Administration, 2009, GUID IND PAT REP OUT

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