Ethical Issues in Dysphagia Management

被引:8
作者
Leslie, Paula [1 ]
Lisiecka, Dominika [2 ,3 ]
机构
[1] Univ Cent Lancashire, Sch Sport & Hlth Sci, Brook Bldg BB126, Preston PR1 2HE, Lancs, England
[2] Inst Technol Tralee, Dept Nursing & Healthcare Sci, Tralee, Kerry, Ireland
[3] Univ Coll Cork, Sch Nursing & Midwifery, Cork, Ireland
关键词
ethics; decision-making; consent; dysphagia; discretion; FEEDING-TUBE; CONSENT; IMPROVE; FOOD;
D O I
10.1055/s-0040-1710561
中图分类号
R36 [病理学]; R76 [耳鼻咽喉科学];
学科分类号
100104 ; 100213 ;
摘要
Dysphagia management is complex and requires balancing individuals' preferences, quality of life, and medical consequences. Ethical challenges are not uncommon given the complexity of dysphagia. Professionals must engage in ethical reflection and shared decision-making when managing dysphagia. Recognizing one's own presuppositions and beliefs may be fundamental to ensuring an ethical approach. The goal of this article is to apply principles of ethics using hypothetical case studies of dysphagia. To this end, we will describe the challenges of working with the disorder of dysphagia; the influence of culture on decision-making about eating and feeding; the importance of information disclosure and respect for individuals' refusal of recommendations; and the interplay of ethical reflection, evidence, and clinical judgment when making complex dysphagia management decisions. These concepts should be kept in mind to ensure compassionate and competent care of the person with eating, drinking, or swallowing problems and their family caregivers.
引用
收藏
页码:257 / 265
页数:9
相关论文
共 38 条
[1]  
American Speech-Language-Hearing Association, 2019, DOC HLTH CAR
[2]  
[Anonymous], 2016, Code of ethics [Ethics]
[3]  
[Anonymous], 1988, ILLNESS NARRATIVES S
[4]  
[Anonymous], 2016, SCOPE PRACTICE SPEEC
[5]  
[Anonymous], 2020, Informed consent
[6]   ASSESSING PATIENTS CAPACITIES TO CONSENT TO TREATMENT [J].
APPELBAUM, PS ;
GRISSO, T .
NEW ENGLAND JOURNAL OF MEDICINE, 1988, 319 (25) :1635-1638
[7]   Complexity of Clinical Decision Making: Consent, Capacity, and Ethics [J].
Askren, Annette ;
Leslie, Paula .
SEMINARS IN SPEECH AND LANGUAGE, 2019, 40 (03) :162-169
[8]  
Beauchamp T.L., 2019, Principles of Biomedical Ethics
[9]   Perceptions of Food and Eating Among Chinese Patients With Cancer Findings of an Ethnographic Study [J].
Bell, Kirsten ;
Lee, Joyce ;
Ristovski-Slijepcevic, Svetlana .
CANCER NURSING, 2009, 32 (02) :118-126
[10]  
Bergstresser SM, 2015, INT J FEM APPROACHES, V8, P204