Haemophilia care in China: Achievements in the past decade

被引:22
作者
Dou, Xueqing [1 ]
Poon, Man-Chiu [2 ,3 ,4 ]
Yang, Renchi [1 ]
机构
[1] Chinese Acad Med Sci & Peking Union Med Coll, Inst Hematol & Blood Dis Hosp, Tianjin Lab Blood Dis Gene Therapy,CAMS Key Lab G, State Key Lab Expt Hematol,Natl Clin Res Ctr Bloo, 288 Nanjing Rd, Tianjin 300020, Peoples R China
[2] Univ Calgary, Cumming Sch Med, Southern Alberta Rare Blood & Bleeding Disorders, Dept Med,Foothills Med Ctr,Alberta Hlth Serv, Calgary, AB, Canada
[3] Univ Calgary, Cumming Sch Med, Southern Alberta Rare Blood & Bleeding Disorders, Dept Pediat,Foothills Med Ctr,Alberta Hlth Serv, Calgary, AB, Canada
[4] Univ Calgary, Cumming Sch Med, Southern Alberta Rare Blood & Bleeding Disorders, Dept Oncol,Foothills Med Ctr,Alberta Hlth Serv, Calgary, AB, Canada
关键词
China; collaborative network; government policy; haemophilia care; industry; World Federation of Haemophilia; DOSE SECONDARY PROPHYLAXIS; FACTOR-VIII; GENE; PSEUDOTUMOR; MUTATIONS; IDENTIFICATION; ARTHROPATHY; MANAGEMENT; CHILDREN; EFFICACY;
D O I
10.1111/hae.14101
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
There is a large population of people with haemophilia in China. However, the development of haemophilia care in China lagged far behind developed countries and was unbalanced across different regions. With the establishment of the Hemophilia Treatment Center Collaborative Network of China (HTCCNC) in 2004 and its collaboration with the Chinese government, the World Federation of Haemophilia (WFH), non-profit foundations, industries, and experts from other countries, haemophilia care in China have made considerable strides in building capacity. The HTCCNC helped develop clinics throughout the country, promote multidisciplinary care, promote prophylaxis (albeit low-dose), advance clinical evaluation and treatment, and research. With many collaborative efforts in the past decade, haemophilia care in China has entered a new stage of development. In this review, we summarize these major achievements and efforts within the last decade.
引用
收藏
页码:759 / 767
页数:9
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