Structure and process measures of quality of care in adult congenital heart disease patients: A pan-Canadian study

被引:32
作者
Beauchesne, Luc M. [10 ]
Therrien, Judith
Alvarez, Nanette [1 ]
Bergin, Lynn [2 ]
Burggraf, Gary [3 ]
Chetaille, Philippe [4 ]
Gordon, Elaine [5 ]
Kells, Catherine M. [6 ]
Kiess, Marla [7 ]
Mercier, Lise-Andree [8 ]
Oechslin, Erwin N. [9 ]
Stein, Jeffrey [11 ]
Tam, James W. [12 ]
Taylor, Dylan [13 ]
Williams, Anne [14 ]
Khairy, Paul [8 ]
Mackie, Andrew S. [13 ]
Silversides, Candice K. [9 ]
Marelli, Ariane J.
机构
[1] Univ Calgary, Calgary, AB T2N 1N4, Canada
[2] Univ Western Ontario, London, ON N6A 3K7, Canada
[3] Queens Univ, Kingston, ON K7L 3N6, Canada
[4] Univ Laval, Quebec City, PQ G1K 7P4, Canada
[5] McMaster Univ, Hamilton, ON L8S 4L8, Canada
[6] Dalhousie Univ, Halifax, NS B3H 3J5, Canada
[7] Univ British Columbia, Vancouver, BC V5Z 1M9, Canada
[8] Univ Montreal, Montreal, PQ H3C 3J7, Canada
[9] Univ Toronto, Toronto, ON M5S 1A1, Canada
[10] Univ Ottawa, Inst Heart, Ottawa, ON K1Y 4W7, Canada
[11] Univ Saskatchewan, Saskatoon, SK S7N 0W0, Canada
[12] Univ Manitoba, Winnipeg, MB R3T 2N2, Canada
[13] Univ Alberta, Edmonton, AB T6G 2M7, Canada
[14] Mem Univ, St John, NF, Canada
关键词
Heart defects; Congenital; Quality of care; TASK-FORCE; HEALTH-CARE; CONSENSUS CONFERENCE; RIGHT TIME; MANAGEMENT; SOCIETY; ACCESS; PREVALENCE; FACILITIES;
D O I
10.1016/j.ijcard.2010.12.024
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background: There are more adults than children with congenital heart disease. Of over 96,000 ACHD patients in Canada, approximately 50% require ongoing expert care. In spite of published recommendations, data on the quality of care for ACHD patients are lacking. Methods: Survey methodology targeted all Canadian Adult Congenital Heart (CACH) network affiliated ACHD centers. Clinics were asked to prospectively collect outpatient and procedural volumes for 2007. In 2008, centers were surveyed regarding infrastructure, staffing, patient volumes and waiting times. Results: All 15 CACH network registered centers responded. The total number of patients followed in ACHD clinics was 21,879 (median per clinic = 1132 (IQR: 585, 1816)). Of the total 80 adult and pediatric cardiologists affiliated to an ACHD clinic, only 27% had received formal ACHD training. Waiting times for non-urgent consultations were 4 +/- 2 months, and 4 +/- 3 months for percutaneous and surgical procedures. These were beyond Canadian recommended targets at 11 sites (73%) for non-urgent consultations, at 8 sites (53%) for percutaneous interventions and 13 sites (87%) for surgery. Conclusions: Of a minimum number of 96,000 ACHD patients in Canada, only 21,879 were being regularly followed in 2007. At most sites waiting times for ACHD services were beyond Canadian recommended targets. In spite of universal health care access, published guidelines for ACHD patient structure and process measures of health care quality are not being met. (c) 2010 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:70 / 74
页数:5
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