The Challenges, Emotions, Coping, and Gains of Family Caregivers Caring for Patients With Advanced Cancer in Singapore A Qualitative Study

被引:36
|
作者
Leow, Mabel Q. H. [1 ]
Chan, Sally W. C. [2 ]
机构
[1] Singapore Gen Hosp, Biomech Lab, 20 Coll Rd,Level 1, Singapore 169856, Singapore
[2] Univ Newcastle, Fac Hlth & Med, Sch Nursing & Midwifery, Callaghan, NSW, Australia
关键词
Cancer; Community; Family carers; Hospice; Palliative care; PALLIATIVE CARE; EXPERIENCE; NEEDS; LIFE; END;
D O I
10.1097/NCC.0000000000000354
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Background: Caring for a family member with advanced cancer at home is demanding as the ill family member is likely to have complex physical and emotional needs. There is a paucity of studies on the experience of home family caregivers of people with advanced cancer in the Asian region. Objective: The aim of this study was to describe the experiences of family caregivers caring for a person with advanced cancer at home in Singapore. Methods: This was a qualitative study; data were collected by semistructured interviews and analyzed using content analysis. A purposive sample of 19 family caregivers who were taking care of a family member with advanced cancer were recruited from home hospice care services in Singapore. Results: Most of the caregivers were female (n = 14), ranging in age from 21 to 64 years (mean, 46.4 [SD, 10.5] years). Four themes were generated from the data: (1) caregiving challenges, (2) negative emotions, (3) ways of coping, and (4) positive gains of caregiving. Conclusions: This study generated insights into the challenges, emotions, and coping of Asian family caregivers caring for patients with advanced cancer. Such understanding could help in developing appropriate intervention for caregivers to reduce their burden and stress. Implications for Practice: Caregivers require knowledge on resolving family conflicts and about communicating and enhancing closeness with the ill family member. Support from healthcare professionals is essential even if caregivers have support from family members and friends; nurses can make conscious efforts to show concern for caregivers as well as for patients.
引用
收藏
页码:22 / 30
页数:9
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