Health Care Autonomy in Children with Chronic Conditions Implications for Self-Care and Family Management

被引:56
作者
Beacham, Barbara L. [1 ]
Deatrick, Janet A. [1 ]
机构
[1] Univ Penn, Sch Nursing, Ctr Hlth Equ Res, Philadelphia, PA 19104 USA
基金
美国国家卫生研究院;
关键词
Child; Development; Chronic health conditions; Family management; Self-care; Autonomy; EARLY ADOLESCENTS; CHRONIC ILLNESS; CHILDHOOD; PERCEPTIONS; ADHERENCE; PARENTS; SUPPORT; STYLE;
D O I
10.1016/j.cnur.2013.01.010
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Health care autonomy typically occurs during late adolescence but health care providers and families often expect children with chronic health conditions to master self-care earlier. Few studies have examined the development of health care autonomy as it pertains to self-care and family management. This review links the 3 concepts and discusses the implications for families and health care providers. Case studies are provided as exemplars to highlight areas where intervention and research is needed.
引用
收藏
页码:305 / +
页数:14
相关论文
共 50 条
[41]   Constructing the moral body: Self-care among older adults with multiple chronic conditions [J].
Clarke, Laura Hurd ;
Bennett, Erica V. .
HEALTH, 2013, 17 (03) :211-228
[42]   Validity and Reliability of the Self-Care of Chronic Illness Inventory and Self-Care Self-Efficacy Scale in Patients Living With Cancer [J].
Di Nitto, Marco ;
Durante, Angela ;
Torino, Francesco ;
Bolgeo, Tatiana ;
Damico, Vincenzo ;
Ghizzardi, Greta ;
Zerulo, Sipontina Rita ;
Alvaro, Rosaria ;
Vellone, Ercole ;
Biagioli, Valentina .
JOURNAL OF ADVANCED NURSING, 2025,
[43]   Nursing Intervention to Improve Positive Mental Health and Self-Care Skills in People with Chronic Physical Health Conditions [J].
Aurelia Sanchez-Ortega, Maria ;
Teresa Lluch-Canut, Maria ;
Roldan-Merino, Juan ;
Aguera, Zaida ;
Angel Hidalgo-Blanco, Miguel ;
Moreno-Poyato, Antonio R. ;
Tinoco-Camarena, Jose ;
Moreno-Arroyo, Carmen ;
Puig-Llobet, Montserrat .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2023, 20 (01)
[44]   Self-care of long-term conditions: patients' perspectives and their (limited) use of community pharmacies [J].
Ogunbayo, Oladapo J. ;
Schafheutle, Ellen I. ;
Cutts, Christopher ;
Noyce, Peter R. .
INTERNATIONAL JOURNAL OF CLINICAL PHARMACY, 2017, 39 (02) :433-442
[45]   Symptom Recognition as a Mediator in the Self-Care of Chronic Illness [J].
Riegel, Barbara ;
De Maria, Maddalena ;
Barbaranelli, Claudio ;
Matarese, Maria ;
Ausili, Davide ;
Stromberg, Anna ;
Vellone, Ercole ;
Jaarsma, Tiny .
FRONTIERS IN PUBLIC HEALTH, 2022, 10
[46]   Self-Care of African Immigrant Adults with Chronic Illness [J].
Osokpo, Onome Henry ;
Lewis, Lisa M. ;
Ikeaba, Uchechukwu ;
Chittams, Jesse ;
Barg, Frances K. ;
Riegel, Barbara .
CLINICAL NURSING RESEARCH, 2022, 31 (03) :413-425
[47]   Self-care as care left undone? The ethics of the self-care agenda in contemporary healthcare policy [J].
Greaney, Anna-Marie ;
Flaherty, Sinead .
NURSING PHILOSOPHY, 2020, 21 (01)
[48]   Self-care for common colds among patients with chronic conditions. Predictors for higher use of self-care measures - COCO study [J].
Le Goff, Delphine .
EXERCER-LA REVUE FRANCOPHONE DE MEDECINE GENERALE, 2019, (150) :58-59
[49]   An exploration of the self-care practices of foster carers in Australia [J].
Gowan, Mia ;
Peel, Nicole ;
Elcombe, Emma ;
Blythe, Stacy .
ADOPTION AND FOSTERING, 2023, 47 (02) :192-210
[50]   Informal care and the self-management partnership: implications for Australian health policy and practice [J].
Essue, Beverley M. ;
Jowsey, Tanisha ;
Jeon, Yun-Hee ;
Mirzaei, Masoud ;
Pearce-Brown, Carmen L. ;
Aspin, Clive ;
Usherwood, Tim P. .
AUSTRALIAN HEALTH REVIEW, 2010, 34 (04) :414-422