共 10 条
Challenges of C1-Inhibitor Concentrate Self-Administration
被引:20
作者:

Boysen, H. B.
论文数: 0 引用数: 0
h-index: 0
机构:
HAEi, Aarhus, Denmark HAEi, Aarhus, Denmark

Bouillet, L.
论文数: 0 引用数: 0
h-index: 0
机构:
Grenoble Univ Hosp, Natl Reference Ctr Angioedema, Grenoble, France HAEi, Aarhus, Denmark

Aygoeren-Puersuen, E.
论文数: 0 引用数: 0
h-index: 0
机构:
Johann Wolfgang Goethe Univ Hosp, Frankfurt, Germany HAEi, Aarhus, Denmark
机构:
[1] HAEi, Aarhus, Denmark
[2] Grenoble Univ Hosp, Natl Reference Ctr Angioedema, Grenoble, France
[3] Johann Wolfgang Goethe Univ Hosp, Frankfurt, Germany
关键词:
Hereditary angioedema;
Self-administration;
Barriers;
Challenges;
Quality of life;
QUALITY-OF-LIFE;
HEREDITARY ANGIOEDEMA;
QUESTIONNAIRE;
D O I:
10.1159/000351238
中图分类号:
R392 [医学免疫学];
学科分类号:
100102 ;
摘要:
Self-administration of therapy can help hereditary angioedema (HAE) patients regain control of their disease or reduce its impact and improve the quality of their lives. However, data from a self-administration survey, and subsequent discussion at an international HAE expert meeting, identified several barriers to self-administration therapy. These barriers include difficulty in administration technique, availability of nursing resources and the mental capacity of the patient. Encouragingly, international HAE experts identified that once a patient has acquired self-administration skills, they generally retain them in the long-term. As patient uptake increases, it was recommended that follow-up management plans should be established to address any issues from the patient's perspective. Copyright (C) 2013 S. Karger AG, Basel
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页码:21 / 25
页数:5
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机构:
Univ Med Ctr Mainz, Dept Dermatol, Mainz, Germany Charite, Dept Dermatol & Allergy, Allergie Ctr Charite, D-10117 Berlin, Germany

Maurer, M.
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Charite, Dept Dermatol & Allergy, Allergie Ctr Charite, D-10117 Berlin, Germany Charite, Dept Dermatol & Allergy, Allergie Ctr Charite, D-10117 Berlin, Germany