Spina Bifida Grown Up

被引:37
作者
Liptak, Gregory S. [1 ]
Garver, Kimberlee [1 ]
Dosa, Nienke P. [1 ]
机构
[1] Upstate Med Univ, Golisano Childrens Hosp, Dept Pediat, Syracuse, NY USA
关键词
spina bifida; adulthood; transition to adulthood; lifespan; LIFE-COURSE MODEL; YOUNG-ADULTS; HEALTH-CARE; PHYSICAL-ACTIVITY; LATEX ALLERGY; DEPRESSIVE SYMPTOMS; WORK PARTICIPATION; AEROBIC FITNESS; ADOLESCENTS; PREVALENCE;
D O I
10.1097/DBP.0b013e31828c5f88
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
The majority of people with spina bifida in the United States are now older than 18 years of age. Health care delivery for adults with this condition should include routine surveillance for common conditions such as hypertension, hyperlipidemia and cancer. It should also address spina bifida-related complications such as pressure sores, lymphedema, sexual dysfunction and infertility, and hydrocephalus, as well as chiari-related symptoms such as sleep apnea and urologic and renal functioning. Almost all adults with spina bifida benefit from regular followup with specialists in urology, neurosurgery and physiatry. Health care providers for adults with spina bifida should recognize the impact of executive dysfunction and nonverbal learning disability on self management, independent living, and employment in adults with spina bifida. (J Dev Behav Pediatr 34: 206-215, 2013)
引用
收藏
页码:206 / 215
页数:10
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