Living With Cognitive Impairment in China: Exploring Dyadic Experiences Through a Person-Centered Care Lens

被引:6
作者
Wang, Jing [1 ,2 ]
Corazzini, Kirsten N. [3 ]
McConnell, Eleanor S. [2 ,4 ]
Ding, Ding [5 ,6 ]
Xu, Hanzhang [2 ,7 ]
Wei, Sijia [2 ]
Wu, Bei [8 ,9 ]
机构
[1] Fudan Univ, Shanghai, Peoples R China
[2] Duke Univ, Sch Nursing, Durham, NC 27706 USA
[3] Univ Maryland, Sch Nursing, 655 W Lombard St, Baltimore, MD 21201 USA
[4] Dept Vet Affairs, Geriatr Res Educ & Clin Ctr GRECC, Durham, NC USA
[5] Fudan Univ, Huashan Hosp, Inst Neurol, Shanghai, Peoples R China
[6] Fudan Univ, Huashan Hosp, Natl Clin Res Ctr Aging & Med, Shanghai, Peoples R China
[7] Duke Univ, Dept Family Med & Community Hlth, Sch Med, Durham, NC 27706 USA
[8] NYU, Rory Meyers Coll Nursing, 433 1st Ave, New York, NY 10010 USA
[9] NYU Aging Incubator, New York, NY USA
关键词
Alzheimer's disease; caregiving; dyadic relationships; ALZHEIMERS-DISEASE; DEMENTIA; PEOPLE; PREVALENCE; FRAMEWORK; LANGUAGE; IMPACT; HOMES; FOCUS;
D O I
10.1177/0164027520935597
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
China has experienced a substantial increase in the number of older adults with dementia and milder forms of cognitive impairment. Being spouses of Persons with cognitive impairment (PWCI) and living with them for several decades does not necessarily mean that it is easier for them to provide person-centered care and maintain a valued and healthy relationship. The current study explored how elements of PCC, as operationalized by the Senses Framework, operate or fail to operate in the dyadic experiences of PWCI and their spousal care partners within the socio-cultural context of China. Our findings suggest that PWCI and their spouses experience the six senses through the person-centeredness in their daily interactions with each other. It also indicated successes and challenges to being person-centered early in the disease and identified their unmet needs as well as barriers and facilitators to improve their well-being.
引用
收藏
页码:177 / 187
页数:11
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