PATERNALISM AND FAIRNESS IN CLINICAL RESEARCH

被引：11
作者：
Jansen, Lynn A. [1 ,2 ]
Wall, Steven [3 ]
机构：
[1] New York Med Coll, Valhalla, NY 10595 USA
[2] St Vincents Manhattan, Manhattan, KS USA
[3] Bowling Green State Univ, Bowling Green, OH 43403 USA
来源：
BIOETHICS | 2009年 / 23卷 / 03期
关键词：
paternalism; distributive fairness; basic liberty; research ethics;
D O I：
10.1111/j.1467-8519.2008.00651.x
中图分类号：
B82 [伦理学（道德学）];
学科分类号：
摘要：
In this paper, we defend the ethics of clinical research against the charge of paternalism. We do so not by denying that the ethics of clinical research is paternalistic, but rather by defending the legitimacy of paternalism in this context. Our aim is not to defend any particular set of paternalistic restrictions, but rather to make a general case for the permissibility of paternalistic restrictions in this context. Specifically, we argue that there is no basic liberty-right to participate in clinical research and that considerations of distributive fairness justify some paternalistic protections of research subjects.
引用
收藏
页码：172 / 182
页数：11
相关论文
共 44 条
  • [1] Edwards S.J.L., Kirchin S., Huxtable R., Research Ethics and Paternalism, J Med Ethics, pp. 88-91, (2004)
  • [2] Garrard E., Dawson A., What is the role of the research ethics committee? Paternalism, inducements and harm in research ethics, J Med Ethics, pp. 419-423, (2005)
  • [3] Pattullo E.J., IRBs and the Freedom to take Risks, NEJM, 307, pp. 1156-1159, (1982)
  • [4] Legal Theory, 11, pp. 259-284, (2005)
  • [5] De Marneffe P., Avoiding Paternalism, Philos Public Affs, pp. 68-94, (2006)
  • [6] Beauchamp T., Childress J., Edition, (2001)
  • [7] Levine R.J., The Role of Assessment of Risk Benefit Criteria in the Determination of Biomedical and Behavorial Research, The Belmont Report
  • [8] Weijer C., The Ethical Analysis of Risk, J Law Med Ethics, 28, pp. 344-361, (2000)
  • [9] Dworkin G., Paternalism, The Monist, 56, pp. 65-66, (1972)
  • [10] Feinberg J., Harm to Self, pp. 9-10, (1986)
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