Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

被引：29

作者：

Janssen, Eveline P. C. J. ^{[1
,2
]}

de Vugt, Marjolein ^{[1
]}

Kohler, Sebastian ^{[1
]}

Wolfs, Claire ^{[1
]}

Kerpershoek, Liselot ^{[1
]}

Handels, Ron L. H. ^{[1
]}

Orrell, Martin ^{[3
]}

Woods, Bob ^{[4
]}

Jelley, Hannah ^{[4
]}

Stephan, Astrid ^{[5
]}

Bieber, Anja ^{[5
]}

Meyer, Gabriele ^{[5
]}

Engedal, Knut ^{[6
]}

Selbaek, Geir ^{[6
]}

Wimo, Anders ^{[7
]}

Irving, Kate ^{[8
]}

Hopper, Louise ^{[8
]}

Marques, Maria ^{[9
]}

Goncalves-Pereira, Manuel ^{[9
]}

Portolani, Elisa ^{[10
]}

Zanetti, Orazio ^{[10
]}

Verhey, Frans R. ^{[1
]}

机构：

[1] Maastricht Univ, Sch Mental Hlth & Neurosci, Dept Psychiat & Neuropsychol, Alzheimer Ctr Limburg,Med Ctr, Maastricht, Netherlands

[2] Mondriaan, Dept Old Age Psychiat, Heerlen, Netherlands

[3] Univ Nottingham, Inst Mental Hlth, Fac Med & Hlth Sci, Dept Psychiat & Appl Psychol, Nottingham, England

[4] Bangor Univ, Dementia Serv Dev Ctr Wales, Bango, Wales

[5] Fac Med, Inst Hlth & Nursing Sci, Halle, Germany

[6] Vestfold Hosp Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway

[7] Karolinska Inst, Dept Neurobiol Care Sci & Soc, Stockholm, Sweden

[8] Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland

[9] Univ Nova Lisboa, Nova Med Sch, CEDOC Chron Dis Res Ctr, Fac Ciencias Med, Lisbon, Portugal

[10] IRCCS Ctr San Giovanni di Dio, Alzheimer Unit, Brescia, Italy

来源：

AGING & MENTAL HEALTH | 2017年 / 21卷 / 01期

基金：

英国经济与社会研究理事会; 瑞典研究理事会;

关键词：

Dementia; social health; well-being; quality of life; caregivers; INFORMAL CAREGIVERS; SELF-MANAGEMENT; ALZHEIMERS-DISEASE; HOSPITAL ANXIETY; BURDEN; SCALE; PEOPLE; CARE; STRATEGIES; VALIDITY;

D O I：

10.1080/13607863.2016.1255716

中图分类号：

R592 [老年病学]; C [社会科学总论];

学科分类号：

03 ; 0303 ; 100203 ;

摘要：

Objectives: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare.Methods: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time.Results: A 5-class model was identified, with the best Bayesian Information Criterion value, significant likelihood ratio test (p < 0.001), high entropy score (0.88) and substantive interpretability. The classes could be differentiated on two axes: (i) caregivers' age, relationship with persons with dementia, severity of dementia, and (ii) tendency towards stress and difficulty adapting to stress. Classes showed significant differences with all dependent variables, and were labelled older low strain', older intermediate strain', older high strain', younger low strain' and younger high strain'.Conclusion: Differences exist between types of caregivers that explain variability in quality of life, depressive symptoms and perseverance time. Our findings may give direction for tailored interventions for caregivers of persons with dementia, which may improve social health and reduce health care costs.

引用

页码：49 / 57

页数：9

共 47 条

[1] Awareness in dementia: A review of clinical correlates [J].