A roadmap for precision medicine research recruitment: empirical assessment of the public's willingness to participate

被引：1
作者：
Moriarty, Kelsey [1 ]
Wolf, Susan M. [2 ]
Veach, Patricia M. [1 ]
LeRoy, Bonnie [1 ]
MacFarlane, Ian M. [3 ]
Zierhut, Heather A. [1 ]
机构：
[1] Univ Minnesota Twin Cities, Dept Genet Cell Biol & Dev, Minneapolis, MN 55455 USA
[2] Univ Minnesota Twin Cities, Law Sch, Med Sch & Consortium Law & Values Hlth, Minneapolis, MN 55455 USA
[3] Elizabethtown Coll, Dept Psychol, Elizabethtown, PA 17022 USA
来源：
PERSONALIZED MEDICINE | 2020年 / 17卷 / 05期
基金：
美国国家卫生研究院;
关键词：
genetics studies; genomics studies; personalized medicine; precision medicine; recruitment; ATTITUDES; PERCEPTIONS; PROGRAM;
D O I：
10.2217/pme-2019-0125
中图分类号：
R9 [药学];
学科分类号：
1007 ;
摘要：
Aim:Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research.Materials & methods:Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey.Results:Few respondents had heard of 'precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine.Conclusion:This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.
引用
收藏
页码：345 / 359
页数：15
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