Special Requirements for Electronic Medical Records in Adolescent Medicine

被引:50
作者
Anoshiravani, Arash [1 ,2 ,3 ]
Gaskin, Gregory L. [2 ]
Groshek, Mark R. [4 ,5 ]
Kuelbs, Cynthia [6 ,7 ]
Longhurst, Christopher A. [1 ,2 ]
机构
[1] Stanford Univ, Dept Pediat, Stanford, CA 94305 USA
[2] Lucile Packard Childrens Hosp, Dept Clin Informat, Palo Alto, CA USA
[3] Santa Clara Valley Med Ctr, Santa Clara Cty Juvenile Custody Inst, San Jose, CA 95128 USA
[4] Kaiser Permanente, Dept Pediat, Denver, CO USA
[5] Kaiser Permanente, Hlth Connect Dept, Denver, CO USA
[6] Rady Childrens Hosp, Dept Informat Technol, San Diego, CA USA
[7] Univ Calif San Diego, Dept Pediat, San Diego, CA 92103 USA
关键词
Adolescent; Electronic medical records; Confidentiality; Health services research; PERSONAL HEALTH RECORDS; US HOSPITALS; CONFIDENTIALITY; CARE; INFORMATION; DOCTORS; PATIENT; SYSTEMS;
D O I
10.1016/j.jadohealth.2012.08.003
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Adolescents are a group likely to seek and, perhaps, most likely to benefit from electronic access to health information. Despite significant advances in technical capabilities over the past decade, to date neither electronic medical record vendors nor many health care systems have adequately addressed the functionality and process design considerations needed to protect the confidentiality of adolescent patients in an electronic world. We propose a shared responsibility for creating the necessary tools and processes to maintain the adolescent confidentiality required by most states: (1) system vendors must provide key functionality in their products (adolescent privacy default settings, customizable privacy controls, proxy access, and health information exchange compatibility), and (2) health care institutions must systematically address relevant adolescent confidentiality policies and process design issues. We highlight the unique technical and process considerations relevant to this patient population, as well as the collaborative multistakeholder work required for adolescent patients to experience the potential benefits of both electronic medical records and participatory health information technology. (C) 2012 Society for Adolescent Health and Medicine. All rights reserved.
引用
收藏
页码:409 / 414
页数:6
相关论文
共 21 条
[1]  
Adler-Milstein J, 2011, AM J MANAG CARE, V17, P761
[2]   Pediatric Aspects of Inpatient Health Information Technology Systems [J].
不详 .
PEDIATRICS, 2008, 122 (06) :E1287-E1296
[3]   Confidentiality, consent, and caring for the adolescent patient [J].
Berlan, Elise D. ;
Bravender, Terrill .
CURRENT OPINION IN PEDIATRICS, 2009, 21 (04) :450-456
[4]   The "Meaningful Use" Regulation for Electronic Health Records [J].
Blumenthal, David ;
Tavenner, Marilyn .
NEW ENGLAND JOURNAL OF MEDICINE, 2010, 363 (06) :501-504
[5]   Whose Personal Control? Creating Private, Personally Controlled Health Records for Pediatric and Adolescent Patients [J].
Bourgeois, Fabienne C. ;
Taylor, Patrick L. ;
Emans, S. Jean ;
Nigrin, Daniel J. ;
Mandi, Kenneth D. .
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 2008, 15 (06) :737-743
[6]   Concerns over confidentiality may deter adolescents from consulting their doctors. A qualitative exploration [J].
Carlisle, J ;
Shickle, D ;
Cork, M ;
McDonagh, A .
JOURNAL OF MEDICAL ETHICS, 2006, 32 (03) :133-137
[7]   Living Profiles: Design of a health media platform for teens with special healthcare needs [J].
Chira, Peter ;
Nugent, Lisa ;
Miller, Kimberly ;
Park, Tina ;
Donahue, Sean ;
Soni, Amit ;
Nugent, Diane ;
Sandborg, Christy .
JOURNAL OF BIOMEDICAL INFORMATICS, 2010, 43 (05) :S9-S12
[8]   Open Notes: Doctors and Patients Signing On [J].
Delbanco, Tom ;
Walker, Jan ;
Darer, Jonathan D. ;
Elmore, Joann G. ;
Feldman, Henry J. ;
Leveille, Suzanne G. ;
Ralston, James D. ;
Ross, Stephen E. ;
Vodicka, Elisabeth ;
Weber, Valerie D. .
ANNALS OF INTERNAL MEDICINE, 2010, 153 (02) :121-W45
[9]   Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care [J].
Detmer, Don ;
Bloomrosen, Meryl ;
Raymond, Brian ;
Tang, Paul .
BMC MEDICAL INFORMATICS AND DECISION MAKING, 2008, 8 (1)
[10]   Influence of physician confidentiality assurances on adolescents' willingness to disclose information and seek future health care - A randomized controlled trial [J].
Ford, CA ;
Millstein, SG ;
HalpernFelsher, BL ;
Irwin, CE .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 1997, 278 (12) :1029-1034