Finding Strength in Vulnerability: Ethical Approaches when Conducting Research with Vulnerable Populations

被引:16
作者
Mollard, Elizabeth [1 ]
Hatton-Bowers, Holly [2 ]
Tippens, Julie [2 ]
机构
[1] Univ Nebraska Med Ctr, Coll Nursing, Lincoln Div, Lincoln, NE USA
[2] Univ Nebraska, Coll Educ & Human Sci, Lincoln, NE USA
关键词
HEALTH; WOMEN;
D O I
10.1111/jmwh.13151
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Researchers who desire to make positive changes for vulnerable populations often conduct problem-focused studies. Although problem-focused research is important, when such studies are not carefully designed, their results can contribute to a deficit discourse. A deficit discourse is a narrative that describes the person through a myopic lens of negativity characterized only by illness, death, depression, failure, or the like. Deficit discourse negatively affects how health care providers and society interact with vulnerable people. This article discusses deficit discourse in health care and strengths-based research: an ethical approach to working with vulnerable individuals in research settings and a strategy to overcome deficit discourse. Strengths-based research approaches balance risks with countermeasures that include areas that are positive and amenable to growth or intervention. Strengths-based research can be conducted using qualitative, quantitative, or mixed-methods methodology. Strengths-based research should be culturally relevant and population-specific, often including the individuals of study throughout the process. By modifying the research approach, critical problems can be identified and addressed while also emphasizing positive ways to empower individuals and improve their lives. Additionally, these changes better the way researchers and health care providers view and care for people while also challenging deficit discourses in society at large.
引用
收藏
页码:802 / 807
页数:6
相关论文
共 32 条
  • [1] Reproducing stigma: Interpreting "overweight" and "obese" women's experiences of weight-based discrimination in reproductive healthcare
    Bombak, Andrea E.
    McPhail, Deborah
    Ward, Pamela
    [J]. SOCIAL SCIENCE & MEDICINE, 2016, 166 : 94 - 101
  • [2] The concept of ′vulnerability′ in research ethics: an in-depth analysis of policies and guidelines
    Bracken-Roche, Dearbhail
    Bell, Emily
    Macdonald, Mary Ellen
    Racine, Eric
    [J]. HEALTH RESEARCH POLICY AND SYSTEMS, 2017, 15
  • [3] Photovoice and empowerment: evaluating the transformative potential of a participatory action research project
    Budig, Kirsten
    Diez, Julia
    Conde, Paloma
    Sastre, Marta
    Hernan, Mariano
    Franco, Manuel
    [J]. BMC PUBLIC HEALTH, 2018, 18
  • [4] Analysis of 589,306 genomes identifies individuals resilient to severe Mendelian childhood diseases
    Chen, Rong
    Shi, Lisong
    Hakenberg, Joerg
    Naughton, Brian
    Sklar, Pamela
    Zhang, Jianguo
    Zhou, Hanlin
    Tian, Lifeng
    Prakash, Om
    Lemire, Mathieu
    Sleiman, Patrick
    Cheng, Wei-yi
    Chen, Wanting
    Shah, Hardik
    Shen, Yulan
    Fromer, Menachem
    Omberg, Larsson
    Deardorff, Matthew A.
    Zackai, Elaine
    Bobe, Jason R.
    Levin, Elissa
    Hudson, Thomas J.
    Groop, Leif
    Wang, Jun
    Hakonarson, Hakon
    Wojcicki, Anne
    Diaz, George A.
    Edelmann, Lisa
    Schadt, Eric E.
    Friend, Stephen H.
    [J]. NATURE BIOTECHNOLOGY, 2016, 34 (05) : 531 - 538
  • [5] Theoretical and practical issues for the measurement of protective factors
    Cording, Jacinta R.
    Christofferson, Sarah M. Beggs
    [J]. AGGRESSION AND VIOLENT BEHAVIOR, 2017, 32 : 45 - 54
  • [6] Creswell J.W., 2017, Designing and Conducting Mixed Methods Research, V3rd, DOI DOI 10.1111/J.1753-6405.2007.00096.X
  • [7] Davis LP., 2019, Currents, V1, P117, DOI [DOI 10.3998/CURRENTS.17387731.0001.110, 10.3998/currents.17387731.0001.110]
  • [8] de Chesnay M., 2020, Caring for the vulnerable: Perspectives in nursing theory, practice, and research, V5th
  • [9] Remote dwelling Aboriginal Australian women and birthing: A critical review of literature
    Felton-Busch, Catrina
    Larkins, Sarah
    [J]. WOMEN AND BIRTH, 2019, 32 (01) : 6 - 15
  • [10] Fogarty W., 2018, CHANGING NARRATIVE A