Development of an internet-based support and coaching model for adolescents and young adults with ADHD and autism spectrum disorders: a pilot study

被引:31
|
作者
Wentz, Elisabet [1 ,2 ]
Nyden, A. [1 ]
Krevers, B. [2 ,3 ]
机构
[1] Univ Gothenburg, Gillberg Neuropsychiat Ctr, Inst Neurosci & Physiol, S-41119 Gothenburg, Sweden
[2] Swedish Inst Hlth Sci, Vardal Inst, Lund, Sweden
[3] Linkoping Univ, Fac Hlth Sci, Dept Med & Hlth Sci, Linkoping, Sweden
关键词
Autism spectrum disorder; ADHD; Internet-based support; Coaching; Intervention; Self-esteem; DEFICIT-HYPERACTIVITY DISORDER; QUALITY-OF-LIFE; ATTENTION-DEFICIT/HYPERACTIVITY DISORDER; MANCHESTER SHORT ASSESSMENT; REHABILITATION PROCESS; DEPRESSION SCALE; SOCIAL SKILLS; COHERENCE; SYMPTOMS; CHILDREN;
D O I
10.1007/s00787-012-0297-2
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
The aims of this paper were to develop an internet-based support and coaching model for young people with autism spectrum disorder (ASD) and/or attention-deficit/hyperactivity disorder (ADHD), and to validate the model. A user-centred design was applied to develop a model for internet-based support and coaching, where individuals received 8-week support via internet (chat). The model was validated by 10 individuals, 15-26 years of age, with ASD and/or ADHD. Self-report questionnaires [Sense of Coherence (SOC), the Rosenberg Self Esteem Scale, the Manchester Short Assessment of Quality of Life, Montgomery sberg Depression Rating Scale, and the Hospital Anxiety and Depression Scale] were distributed before and after intervention. A structured interview regarding the quality of the model, the Patient perspective of Care and Rehabilitation process (POCR), was used after the intervention. The validation showed significant improvement of SOC, self-esteem and subjective Quality of Life at follow-up and the majority perceived high fulfilment/importance on the POCR. In conclusion, The model can be an important complement to other interventions for young people with ASD and/or ADHD.
引用
收藏
页码:611 / 622
页数:12
相关论文
共 50 条
  • [21] A Profile on Emergency Department Utilization in Adolescents and Young Adults with Autism Spectrum Disorders
    Liu, Guodong
    Pearl, Amanda M.
    Kong, Lan
    Leslie, Douglas L.
    Murray, Michael J.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2017, 47 (02) : 347 - 358
  • [22] Intellectual development in young children with autism spectrum disorders: A longitudinal study
    Peristeri, Eleni
    Andreou, Maria
    AUTISM RESEARCH, 2024, 17 (03) : 543 - 554
  • [23] A Pilot Study on the Effect of Peer Support on Quality of Life of Adolescents with Autism Spectrum Disorder and Gender Dysphoria
    Brandsma, T.
    Visser, K.
    Volk, J. J. G.
    Rijn, A. Balleur van
    Dekker, L. P.
    JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2024, 54 (03) : 997 - 1008
  • [24] Coaching While Waiting for Autism Spectrum Disorder Assessment: Protocol of a Pilot Feasibility Study for a Randomized Controlled Trial on Occupational Performance Coaching and Service Navigation Support
    Bernie, Charmaine
    Williams, Katrina
    Graham, Fiona
    May, Tamara
    JMIR RESEARCH PROTOCOLS, 2021, 10 (01):
  • [25] Public School-Based Interventions for Adolescents and Young Adults With an Autism Spectrum Disorder: A Meta-Analysis
    de Bruin, Catriona L.
    Deppeler, Joanne M.
    Moore, Dennis W.
    Diamond, Neil T.
    REVIEW OF EDUCATIONAL RESEARCH, 2013, 83 (04) : 521 - 550
  • [26] Internet-Based Cognitive-Behavioral Therapy for Insomnia in Adults With Asthma: A Pilot Study
    Luyster, Faith S.
    Ritterband, Lee M.
    Sereika, Susan M.
    Buysse, Daniel J.
    Wenzel, Sally E.
    Strollo, Patrick J.
    BEHAVIORAL SLEEP MEDICINE, 2020, 18 (01) : 10 - 22
  • [27] Social skills in neurodevelopmental disorders: a study using role-plays to assess adolescents and young adults with 22q11.2 deletion syndrome and autism spectrum disorders
    Feller, Clemence
    Ilen, Laura
    Eliez, Stephan
    Schneider, Maude
    JOURNAL OF NEURODEVELOPMENTAL DISORDERS, 2024, 16 (01)
  • [28] An Internet-based Self-management Program with Telephone Support for Adolescents with Arthritis: A Pilot Randomized Controlled Trial
    Stinson, Jennifer N.
    McGrath, Patrick J.
    Hodnett, Ellen D.
    Feldman, Brian M.
    Duffy, Ciaran M.
    Huber, Adam M.
    Tucker, Lori B.
    Hetherington, C. Ross
    Tse, Shirley M. L.
    Spiegel, Lynn R.
    Campillo, Sarah
    Gill, Navreet K.
    White, Meghan E.
    JOURNAL OF RHEUMATOLOGY, 2010, 37 (09) : 1944 - 1952
  • [29] Sexual Knowledge, Desires, and Experience of Adolescents and Young Adults With an Autism Spectrum Disorder: An Exploratory Study
    Joyal, Christian C.
    Carpentier, Julie
    McKinnon, Suzie
    Normand, Claude L.
    Poulin, Marie-Helene
    FRONTIERS IN PSYCHIATRY, 2021, 12
  • [30] Internet-delivered psychoeducation for older adolescents and young adults with autism spectrum disorder (SCOPE): An open feasibility study
    Backman, Anna
    Mellblom, Are
    Norman-Claesson, Elisabet
    Keith-Bodros, Gunilla
    Frostvittra, Maj
    Bolte, Sven
    Hirvikoski, Tatja
    RESEARCH IN AUTISM SPECTRUM DISORDERS, 2018, 54 : 51 - 64