Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine

被引:13
作者
Blell, Mwenza [1 ]
Hunter, M. A. [2 ,3 ]
机构
[1] Newcastle Univ, Policy Eth & Life Sci Res Ctr, Sch Geog Polit & Sociol, Newcastle Upon Tyne, Tyne & Wear, England
[2] London Sch Econ & Polit Sci, CPNSS, Dept Philosophy Log & Sci Method, London, England
[3] Univ Calif Davis, Philosophy Dept, Davis, CA 95616 USA
关键词
genetic testing; ethnicity; race; personalized medicine; ethics; RACE; HEALTH; SCIENCE; KNOWLEDGE; ETHNICITY; BUSINESS; DISEASE;
D O I
10.3389/fmed.2019.00048
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The growth in the direct-to-consumer genetic testing industry poses a number of challenges for healthcare practice, among a number of other areas of concern. Several companies providing this service send their customers reports including information variously referred to as genetic ethnicity, genetic heritage, biogeographic ancestry, and genetic ancestry. In this article, we argue that such information should not be used in healthcare consultations or to assess health risks. Far from representing a move toward personalized medicine, use of this information poses risks both to patients as individuals and to racialized ethnic groups because of the way it misrepresents human genetic diversity.
引用
收藏
页数:7
相关论文
共 62 条
  • [1] Adams R., 2018, The Guardian
  • [2] Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing
    Allyse, Megan A.
    Robinson, David H.
    Ferber, Matthew J.
    Sharp, Richard R.
    [J]. MAYO CLINIC PROCEEDINGS, 2018, 93 (01) : 113 - 120
  • [3] [Anonymous], 2018, The Guardian
  • [4] [Anonymous], CBC NOVA SCOTIA
  • [5] [Anonymous], MY GRANDM WAS IT WHY
  • [6] [Anonymous], 2018, NY TIMES
  • [7] [Anonymous], 2017, CBC RADIO
  • [8] [Anonymous], CONCEPTS EPIDEMIOLOG
  • [9] [Anonymous], 2018, SCI NEWS
  • [10] [Anonymous], 2019, REGISTER