Awkward Choreographies from Cancer's Margins: Incommensurabilities of Biographical and Biomedical Knowledge in Sexual and/or Gender Minority Cancer Patients' Treatment

被引:20
|
作者
Bryson, Mary K. [1 ]
Taylor, Evan T. [2 ]
Boschman, Lorna [2 ]
Hart, Tae L. [3 ]
Gahagan, Jacqueline [4 ]
Rail, Genevieve [5 ]
Ristock, Janice [6 ]
机构
[1] Univ British Columbia, Fac Educ, Dept Language & Literacy Educ, Vancouver, BC, Canada
[2] Univ British Columbia, Dept Language & Literacy Educ, Vancouver, BC, Canada
[3] Ryerson Univ, Dept Psychol, Toronto, ON, Canada
[4] Dalhousie Univ, Sch Hlth & Human Performance, Halifax, NS, Canada
[5] Concordia Univ, Simone de Beauvoir Inst, Montreal, PQ, Canada
[6] Univ Manitoba, Womens & Gender Studies, Winnipeg, MB, Canada
基金
加拿大健康研究院; 芬兰科学院;
关键词
Illness narratives; Biographical knowledge; Choreography; Access to knowledge; Cancer; Sexualities; Genders; LGBT; Transgender; Health disparities; Equity; BREAST-CANCER; TRANSGENDER; HEALTH; GAY; EXPERIENCES; WOMEN; CARE; LESBIANS; SUPPORT; IMPACT;
D O I
10.1007/s10912-018-9542-0
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
Canadian and American population-based research concerning sexual and/or gender minority populations provides evidence of persistent breast and gynecologic cancer-related health disparities and knowledge divides. The Cancer's Margins research investigates the complex intersections of sexual and/or gender marginality and incommensurabilities and improvisation in engagements with biographical and biomedical cancer knowledge. The study examines how sexuality and gender are intersectionally constitutive of complex biopolitical mappings of cancer health knowledge that shape knowledge access and its mobilization in health and treatment decision-making. Interviews were conducted with a diverse group (n=81) of sexual and/or gender minority breast or gynecologic cancer patients. The LGBQ//T2 cancer patient narratives we have analyzed document in fine grain detail how it is that sexual and/or gender minority cancer patients punctuate the otherwise lockstep assemblage of their cancer treatment decision-making with a persistent engagement in creative attempts to resist, thwart and otherwise manage the possibility of discrimination and likewise, the probability of institutional erasure in care settings. Our findings illustrate the demands that cancer places on LGBQ//T2 patients to choreograph access to, and mobilization of knowledge and care, across significantly distinct and sometimes incommensurable systems of knowledge.
引用
收藏
页码:341 / 361
页数:21
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