Current Status of Implementation of Self-Administration Training in Various Regions of Europe, Canada and the USA in the Management of Hereditary Angioedema

被引：33

作者：

Caballero, T. ^{[1
]}

Sala-Cunill, A. ^{[2
]}

Cancian, M. ^{[3
]}

Craig, T. J. ^{[5
]}

Neri, S. ^{[4
]}

Keith, P. K. ^{[6
]}

Boccon-Gibod, I. ^{[7
]}

Bethune, C. ^{[8
]}

Bork, K. ^{[9
]}

机构：

[1] Hosp La Paz, Inst Hlth Res IdiPaz, ES-28046 Madrid, Spain

[2] Univ Barcelona, Barcelona, Spain

[3] Univ Padua, Padua, Italy

[4] Catania Univ, Catania, Italy

[5] Penn State Univ, Milton S Hershey Med Ctr, Coll Med, Hershey, PA 17033 USA

[6] McMaster Univ, Hamilton, ON, Canada

[7] Grenoble Univ Hosp, Dept Internal Med, Natl Reference Ctr Angioedema, Grenoble, France

[8] Derriford Hosp, Plymouth PL6 8DH, Devon, England

[9] Johannes Gutenberg Univ Mainz, D-55122 Mainz, Germany

来源：

INTERNATIONAL ARCHIVES OF ALLERGY AND IMMUNOLOGY | 2013年 / 161卷

关键词：

Hereditary angioedema; Self-administration; Current status; Benefits; Quality of life; C1 INHIBITOR DEFICIENCY; C1-INHIBITOR CONCENTRATE; ATTACKS; GUIDELINES; ICATIBANT; EFFICACY; PATIENT;

D O I：

10.1159/000351233

中图分类号：

R392 [医学免疫学];

学科分类号：

100102 ;

摘要：

Results from a 16-question survey about self-administration of hereditary angioedema (HAE) therapy, administered in Europe, Canada and the USA, were used to guide discussion at an international HAE expert meeting. The aim was to capture information about current practice in self-administered HAE therapy in these countries, including self-administration training, the key benefits of switching to self-administration, the barriers to self-administration and trends in self-administration. Overall, switching to self-administration therapy is looked upon favourably from both patient and clinician perspectives by virtue of the potential improvement in quality of life arising from optimisation of therapy and early intervention. The recent changes to product licences allowing self-administration provide additional options for the management of HAE. Copyright (C) 2013 S. Karger AG, Basel

引用

页码：10 / 16

页数：7

共 24 条

[1] Safety and efficacy of icatibant self-administration for acute hereditary angioedema [J].

Boccon-Gibod, I. ;

Bouillet, L. .

CLINICAL AND EXPERIMENTAL IMMUNOLOGY, 2012, 168 (03) :303-307

[2] Efficacy of C1-Inhibitor Concentrate (Berinert®) for the Treatment of Cutaneous Attacks of Acute Hereditary Angioedema Compared to Historical Untreated Controls [J].

Bork, Konrad ;

Staubach, Petra ;

Bernstein, Jonathan A. ;

Feuersenger, Henrike ;

Machnig, Thomas ;

Craig, Timothy J. .

JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2013, 131 (02) :AB31-AB31

[3] Current Management Options for Hereditary Angioedema [J].

Bork, Konrad .

CURRENT ALLERGY AND ASTHMA REPORTS, 2012, 12 (04) :273-280

[4] 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema [J].

Tom Bowen ;

Marco Cicardi ;

Henriette Farkas ;

Konrad Bork ;

Hilary J Longhurst ;

Bruce Zuraw ;

Emel Aygoeren-Pürsün ;

Timothy Craig ;

Karen Binkley ;

Jacques Hebert ;

Bruce Ritchie ;

Laurence Bouillet ;

Stephen Betschel ;

Della Cogar ;

John Dean ;

Ramachand Devaraj ;

Azza Hamed ;

Palinder Kamra ;

Paul K Keith ;

Gina Lacuesta ;

Eric Leith ;

Harriet Lyons ;

Sean Mace ;

Barbara Mako ;

Doris Neurath ;

Man-Chiu Poon ;

Georges-Etienne Rivard ;

Robert Schellenberg ;

Dereth Rowan ;

Anne Rowe ;

Donald Stark ;

Smeeksha Sur ;

Ellie Tsai ;

Richard Warrington ;

Susan Waserman ;

Rohan Ameratunga ;

Jonathan Bernstein ;

Janne Björkander ;

Kristylea Brosz ;

John Brosz ;

Anette Bygum ;

Teresa Caballero ;

Mike Frank ;

George Fust ;

George Harmat ;

Amin Kanani ;

Wolfhart Kreuz ;

Marcel Levi ;

Henry Li ;

Inmaculada Martinez-Saguer .

Allergy, Asthma & Clinical Immunology, 6 (1)

[5] Challenges of C1-Inhibitor Concentrate Self-Administration [J].

Boysen, H. B. ;

Bouillet, L. ;

Aygoeren-Puersuen, E. .

INTERNATIONAL ARCHIVES OF ALLERGY AND IMMUNOLOGY, 2013, 161 :21-25

[6] Hereditary angio-oedema in Denmark: a nationwide survey [J].

Bygum, A. .

BRITISH JOURNAL OF DERMATOLOGY, 2009, 161 (05) :1153-1158

[7] Anaphylactic reaction and antibodies to DX-88 (kallikrein inhibitor) in a patient with hereditary angioedema [J].

Caballero, T ;

López-Serrano, C .

JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 2006, 117 (02) :476-477

[8] Review of Recent Guidelines and Consensus Statements on Hereditary Angioedema Therapy with Focus on Self-Administration [J].

Cicardi, M. ;

Craig, T. J. ;

Martinez-Saguer, I. ;

Hebert, J. ;

Longhurst, H. J. .

INTERNATIONAL ARCHIVES OF ALLERGY AND IMMUNOLOGY, 2013, 161 :3-9

[9] Evidence-based recommendations for the therapeutic management of angioedema owing to hereditary C1 inhibitor deficiency: consensus report of an International Working Group [J].

Cicardi, M. ;

Bork, K. ;

Caballero, T. ;

Craig, T. ;

Li, H. H. ;

Longhurst, H. ;

Reshef, A. ;

Zuraw, B. .

ALLERGY, 2012, 67 (02) :147-157

[10] Icatibant, a New Bradykinin-Receptor Antagonist, in Hereditary Angioedema [J].

Cicardi, M. ;

Banerji, A. ;

Bracho, F. ;

Malbran, A. ;

Rosenkranz, B. ;

Riedl, M. ;

Bork, K. ;

Lumry, W. ;

Aberer, W. ;

Bier, H. ;

Bas, M. ;

Greve, J. ;

Hoffmann, T. K. ;

Farkas, H. ;

Reshef, A. ;

Ritchie, B. ;

Yang, W. ;

Grabbe, J. ;

Kivity, S. ;

Kreuz, W. ;

Levy, R. J. ;

Luger, T. ;

Obtulowicz, K. ;

Schmid-Grendelmeier, P. ;

Bull, C. ;

Sitkauskiene, B. ;

Smith, W. B. ;

Toubi, E. ;

Werner, S. ;

Anne, S. ;

Bjorkander, J. ;

Bouillet, L. ;

Cillari, E. ;

Hurewitz, D. ;

Jacobson, K. W. ;

Katelaris, C. H. ;

Maurer, M. ;

Merk, H. ;

Bernstein, J. A. ;

Feighery, C. ;

Floccard, B. ;

Gleich, G. ;

Hebert, J. ;

Kaatz, M. ;

Keith, P. ;

Kirkpatrick, C. H. ;

Langton, D. ;

Martin, L. ;

Pichler, C. ;

Resnick, D. .

NEW ENGLAND JOURNAL OF MEDICINE, 2010, 363 (06) :532-541

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