Paediatric health-related quality of life: what is it and why should we measure it?

被引:75
作者
Haverman, L. [1 ]
Limperg, P. F. [1 ]
Young, N. L. [2 ]
Grootenhuis, M. A. [1 ,3 ]
Klaassen, R. J. [4 ]
机构
[1] Emma Childrens Hosp, Acad Med Ctr, Psychosocial Dept G8 136, Amsterdam, Netherlands
[2] Laurentian Univ, Sch Rural & Northern Hlth, Sudbury, ON, Canada
[3] Princess Maxima Ctr Pediat Oncol, Utrecht, Netherlands
[4] Univ Ottawa, Childrens Hosp Eastern Ontario, Div Hematol Oncol, Ottawa, ON, Canada
关键词
PATIENT-REPORTED OUTCOMES; CROSS-CULTURAL ADAPTATION; SELF-REPORT; PSYCHOMETRIC EVALUATION; CENTERED-OUTCOMES; ACTIVITIES SCALE; CHILDREN; ADOLESCENTS; INFORMATION; ONCOLOGY;
D O I
10.1136/archdischild-2015-310068
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
[No abstract available]
引用
收藏
页码:393 / 400
页数:8
相关论文
共 50 条
[41]   Family-centred care and health-related quality of life of patients in paediatric neurosciences [J].
Moore, M. H. ;
Mah, J. K. ;
Trute, B. .
CHILD CARE HEALTH AND DEVELOPMENT, 2009, 35 (04) :454-461
[42]   Health-related quality of life in adult survivors after paediatric allo-SCT [J].
C M Löf ;
J Winiarski ;
A Giesecke ;
P Ljungman ;
U Forinder .
Bone Marrow Transplantation, 2009, 43 :461-468
[43]   Health-related quality of life in adult survivors after paediatric allo-SCT [J].
Lof, C. M. ;
Winiarski, J. ;
Giesecke, A. ;
Ljungman, P. ;
Forinder, U. .
BONE MARROW TRANSPLANTATION, 2009, 43 (06) :461-468
[44]   Health-related quality of life anticipated with different management strategies for paediatric febrile neutropaenia [J].
Cheng, S. ;
Teuffel, O. ;
Ethier, M. C. ;
Diorio, C. ;
Martino, J. ;
Mayo, C. ;
Regier, D. ;
Wing, R. ;
Alibhai, S. M. H. ;
Sung, L. .
BRITISH JOURNAL OF CANCER, 2011, 105 (05) :606-611
[45]   Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium [J].
Kirstie Haywood ;
Jo Brett ;
Sam Salek ;
Nancy Marlett ;
Colin Penman ;
Svetlana Shklarov ;
Colleen Norris ;
Maria Jose Santana ;
Sophie Staniszewska .
Quality of Life Research, 2015, 24 :1069-1076
[46]   Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium [J].
Haywood, Kirstie ;
Brett, Jo ;
Salek, Sam ;
Marlett, Nancy ;
Penman, Colin ;
Shklarov, Svetlana ;
Norris, Colleen ;
Santana, Maria Jose ;
Staniszewska, Sophie .
QUALITY OF LIFE RESEARCH, 2015, 24 (05) :1069-1076
[47]   Health-Related Quality of Life and Function after Paediatric Injuries in India: A Longitudinal Study [J].
Jagnoor, Jagnoor ;
Prinja, Shankar ;
Christou, Aliki ;
Baker, Jannah ;
Gabbe, Belinda ;
Ivers, Rebecca .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2017, 14 (10)
[48]   Health-related quality of life and its determinants in paediatric arterial ischaemic stroke survivors [J].
Ghotra, Satvinder K. ;
Johnson, Jeffrey A. ;
Qiu, Weiyu ;
Newton, Amanda S. ;
Rasmussen, Carmen ;
Yager, Jerome Y. .
ARCHIVES OF DISEASE IN CHILDHOOD, 2018, 103 (10) :930-936
[49]   EADV Taskforce's recommendations on measurement of health-related quality of life in paediatric dermatology [J].
Chernyshov, P. ;
de Korte, J. ;
Tomas-Aragones, L. ;
Lewis-Jones, S. .
JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2015, 29 (12) :2306-2316
[50]   Health-related quality of life in patients with bronchiolitis obliterans [J].
Sarria, Edgar E. ;
Mundstock, Eduardo ;
Machado, Denise G. ;
Mocelin, Helena T. ;
Fischer, Gilberto B. ;
Furlan, Silvana P. ;
Antonello, Ivan C. F. ;
Stein, Ricardo ;
Mattiello, Rita .
JORNAL DE PEDIATRIA, 2018, 94 (04) :374-379