A Qualitative Evaluation of the Youth-Check Program: A Psychosocial Intervention Aimed at Young People with Cancer

被引:5
作者
Hanghoj, Signe [1 ]
Boisen, Kirsten A. [1 ]
Nielsen, Margrethe Fogh [2 ]
Pappot, Helle [3 ]
Hjalgrim, Lisa Lyngsie [2 ]
机构
[1] Copenhagen Univ Hosp, Rigshosp, Ctr Adolescent Med, Dept Pediat & Adolescent Med, Blegdamsvej 9, DK-2100 Copenhagen, Denmark
[2] Copenhagen Univ Hosp, Rigshosp, Dept Pediat & Adolescent Med, Copenhagen, Denmark
[3] Copenhagen Univ Hosp, Rigshosp, Dept Oncol, Copenhagen, Denmark
关键词
Cancer; Evaluation; Intervention; Psychosocial; Qualitative; Young people; FRIENDLY HEALTH-CARE; ADOLESCENTS; ADULTS; NEEDS; TEENAGERS; ISSUES;
D O I
10.1016/j.soncn.2022.151268
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Objectives: In many countries, there is a lack of structured psychosocial health interventions to support young people with cancer. Thus, we developed the nurse-led intervention the Youth-Check Program with the aim of supporting young people with cancer. The aim of the study was to evaluate young patients with cancer and their parents' experiences of the program. Data Sources: In total, 23 semi-structured interviews were conducted. Participants were young patients with cancer, aged 12-18 years (n = 10) and parents aged 41-53 years (n =13). Data were analyzed thematically using Malterud's systematic text condensation. Conclusion: Three themes were derived: "The Youth-Check Program offers a safe space that led to openness among the young people," "participation in the Youth-Check Program met parents' needs for support for their teenager," and "the Youth-Check Program provided new insights that were not always taken into account." Implications for Nursing Practice: The Youth-Check Program is a feasible and useful nurse-led intervention, which can be implemented for the benefit of young people with cancer. However, to strengthen the Youth-Check Program, it is important to define young people's individual needs to make sure they are met according to their specific preferences. Most young people took on more treatment responsibility, and they were empowered to set their own agenda in terms of what kind of support they needed in relation to topics that preoccupied them. The parents were given much needed support for their teenagers. (C) 2022 The Author(s). Published by Elsevier Inc.
引用
收藏
页数:9
相关论文
共 39 条
[1]   From controlling to letting go: what are the psychosocial needs of parents of adolescents with a chronic illness? [J].
Akre, Christina ;
Suris, Joan-Carles .
HEALTH EDUCATION RESEARCH, 2014, 29 (05) :764-772
[2]   Assessment of Youth-Friendly Health Care: A Systematic Review of Indicators Drawn From Young People's Perspectives [J].
Ambresin, Anne-Emmanuelle ;
Bennett, Kristina ;
Patton, George C. ;
Sanci, Lena A. ;
Sawyer, Susan M. .
JOURNAL OF ADOLESCENT HEALTH, 2013, 52 (06) :670-681
[3]   Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support [J].
Ander, Malin ;
Cederberg, Jenny Thorsell ;
von Essen, Louise ;
Hoven, Emma .
PLOS ONE, 2018, 13 (04)
[4]   Everyday life challenges among adolescent and young adult survivors of childhood acute lymphoblastic leukemia: An in-depth qualitative study [J].
Andres-Jensen, Liv ;
Larsen, Hanne Baekgaard ;
Johansen, Christoffer ;
Frandsen, Thomas Leth ;
Schmiegelow, Kjeld ;
Wahlberg, Ayo .
PSYCHO-ONCOLOGY, 2020, 29 (10) :1630-1637
[5]  
[Anonymous], 2018, Nursing Adolescents and Young Adults with Cancer
[6]   Childhood cancer patients' baseline for social affiliation as a determining factor for the self-reported impact of person-based exclusion [J].
Carlsen, Line Thoft ;
Christensen, Sophie Rex .
JOURNAL OF PSYCHOSOCIAL ONCOLOGY, 2020, 38 (06) :714-727
[7]   Psychological distress in parents of children treated for cancer: An explorative study [J].
Carlsson, Tommy ;
Kukkola, Laura ;
Ljungman, Lisa ;
Hoven, Emma ;
von Essen, Louise .
PLOS ONE, 2019, 14 (06)
[8]   Balancing Parental Involvement With Adolescent Friendly Health Care in Teenagers With Diabetes: Are We Getting It Right? [J].
Duncan, Rony E. ;
Jekel, Maureen ;
O'Connell, Michele A. ;
Sanci, Lena A. ;
Sawyer, Susan M. .
JOURNAL OF ADOLESCENT HEALTH, 2014, 55 (01) :59-64
[9]   Narrative Review of the Educational, Vocational, and Financial Needs of Adolescents and Young Adults with Cancer: Recommendations for Support and Research [J].
Fardell, Joanna E. ;
Wakefield, Claire E. ;
Patterson, Pandora ;
Lum, Alistair ;
Cohn, Richard J. ;
Pini, Simon A. ;
Daly, Ursula M. Sansom .
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2018, 7 (02) :143-147
[10]   Clinical Conversations About Health: The Impact of Confidentiality in Preventive Adolescent Care [J].
Gilbert, Amy Lewis ;
Rickert, Vaughn I. ;
Aalsma, Matthew C. .
JOURNAL OF ADOLESCENT HEALTH, 2014, 55 (05) :672-677