Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI)

被引：24

作者：

Escoffery, Cam ^{[1
]}

Bamps, Yvan ^{[1
]}

LaFrance, W. Curt, Jr. ^{[2
]}

Stoll, Shelley ^{[3
]}

Shegog, Ross ^{[4
]}

Buelowe, Janice ^{[5
]}

Shafer, Patricia ^{[6
]}

Thompson, Nancy J. ^{[1
]}

McGee, Robin E. ^{[1
]}

Hatfield, Katherine ^{[1
]}

机构：

[1] Emory Univ, Rollins Sch Publ Hlth, Atlanta, GA 30322 USA

[2] Brown Univ, Rhode Isl Hosp, Providence, RI 02903 USA

[3] Univ Michigan, Ann Arbor, MI 48109 USA

[4] Univ Texas Houston, Sch Publ Hlth, Houston, TX 77030 USA

[5] Epilepsy Fdn, Landover, MD 20785 USA

[6] Beth Israel Deaconess Med Ctr, Boston, MA 02215 USA

来源：

EPILEPSY & BEHAVIOR | 2015年 / 50卷

关键词：

Epilepsy self-management; Adherence; Behavioral measurement; Seizure disorder; QUALITY-OF-LIFE; CHRONIC DISEASE; HEALTH-CARE; STIGMA; DEPRESSION; SCALE; OUTCOMES; TRIAL; MODEL;

D O I：

10.1016/j.yebeh.2015.07.025

中图分类号：

B84 [心理学]; C [社会科学总论]; Q98 [人类学];

学科分类号：

03 ; 0303 ; 030303 ; 04 ; 0402 ;

摘要：

Epilepsy self-management is the total sumof steps that people perform to maximize seizure control, to minimize the impact of having a seizure disorder, and to maximize quality of life. As part of a phased approach to instrument development, we conducted descriptive analyses of data from epilepsy self-management items covering 10 domains of self-management gathered from 422 adults with epilepsy from multiple study sites. Participants most frequently reported performing sets of behaviors related to managing treatment and stigma, information seeking, managing symptoms, and communicating with providers. Behaviors reported with lower frequency were related to seeking social support and engaging in wellness behaviors. Significant differences for the domains were found for income, gender, and education levels but not for other different demographic variables. A subsequent analytic phase, reported in a companion article, will use factor analysis to identify and validate the subscale structure of the domains. (C) 2015 Elsevier Inc. All rights reserved.

引用

页码：172 / 183

页数：12

共 53 条

[1]

Aldenkamp AP, 1999, EPILEPSIA, V40, P94

[2]

[Anonymous], 1998, 1997 NAT C PUBL HLTH

[3]

[Anonymous], 2012, Epilepsy across the spectrum: Promoting health and understanding, DOI [DOI 10.17226/13379, 10.17226/13379]

[4]

Austin JK, 2006, EPILEPSY BEHAV, V9, P386, DOI 10.1016/j.yebeh.2006.08.015

[5] Liverpool Seizure Severity Scale revisited [J].

Baker, GA ;

Smith, DF ;

Jacoby, A ;

Hayes, JA ;

Chadwick, DW .

SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 1998, 7 (03) :201-205

[6] Twelve Evidence-Based Principles for Implementing Self-Management Support in Primary Care [J].

Battersby, Malcolm ;

Von Korff, Michael ;

Schaefer, Judith ;

Davis, Connie ;

Ludman, Evette ;

Greene, Sarah M. ;

Parkerton, Melissa ;

Wagner, Edward H. .

JOINT COMMISSION JOURNAL ON QUALITY AND PATIENT SAFETY, 2010, 36 (12) :561-570

[7] Sociodemographic disparities in epilepsy care: Results from the Houston/New York City health care use and outcomes study [J].

Begley, Charles E. ;

Basu, Rituparna ;

Reynolds, Thomas ;

Lairson, David R. ;

Dubinsky, Stephanie ;

Newmark, Michael ;

Barnwell, Forbes ;

Hauser, Allen ;

Hesdorffer, Dale ;

Hernandez, Nora ;

Karceski, Steven C. ;

Shih, Tina .

EPILEPSIA, 2009, 50 (05) :1040-1050

[8] Patient self-management of chronic disease in primary care [J].

Bodenheimer, T ;

Lorig, K ;

Holman, H ;

Grumbach, K .

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2002, 288 (19) :2469-2475

[9] Self-management of epilepsy - A review of the concept and its outcomes [J].

Buelow, JM ;

Johnson, J .

DISEASE MANAGEMENT & HEALTH OUTCOMES, 2000, 8 (06) :327-336

[10] Development of a self-efficacy scale for children and adolescents with epilepsy [J].

Caplin, D ;

Austin, JK ;

Dunn, DW ;

Shen, JZ ;

Perkins, S .

CHILDRENS HEALTH CARE, 2002, 31 (04) :295-309

← 1 2 3 4 5 6 →