Experts as 'storytellers' in reproductive genetics: exploring key issues

被引:20
作者
Ettorre, E [1 ]
机构
[1] Univ Plymouth, Dept Sociol, Plymouth PL4 8AA, Devon, England
关键词
new genetics; experts; reproduction; ethics; prenatal testing;
D O I
10.1111/1467-9566.00172
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
The paper reports findings from a European study on experts' perceptions of reproductive genetics, and explores the notion of experts as 'genetic story tellers' and producers of genetic ideology. The first part provides experts' accounts of families who are perceived as being in need of prenatal genetic screening. Here, I reflect on the types of claims experts construct as well. as on the impact of these claims. The second part is a theoretical elaboration of how, in making their claims, experts employ a series of normative strategies (i. e. claiming ownership of knowledge and practices, separating the social and scientific, deploying genetic foundationalism and advocating the application of bioethics) in their genetics work. The conclusion is that, while these issues are enormously difficult and socially complex, we must be vigilant because the moral and ethical values of our society may be at stake.
引用
收藏
页码:539 / 559
页数:21
相关论文
共 59 条
[1]  
[Anonymous], 1998, Genetic maps and human imaginations: The limits of science in understanding who we are
[2]  
[Anonymous], 1997, Bodies in glass: genetics, eugenics, and embryo ethics
[3]  
Asch A, 1996, FEMINISM BIOETHICS R
[4]   Genetic screening for reproductive planning: Methodological and conceptual issues in policy analysis [J].
Asch, DA ;
Hershey, JC ;
Pauly, MV ;
Patton, JP ;
Jedrziewski, MK ;
Mennuti, MT .
AMERICAN JOURNAL OF PUBLIC HEALTH, 1996, 86 (05) :684-690
[5]   ''Everything you need to know'': How women's magazines structure prenatal diagnosis for women over 35 [J].
Beaulieu, A ;
Lippman, A .
WOMEN & HEALTH, 1995, 23 (03) :59-74
[6]  
Beck Ulrich., 1992, Risk society: Towards a new modernity
[7]  
BEEKHUIS JR, 1993, MATERNAL SERUM SCREE
[8]  
BOBINSKI MA, 1996, HUMAN GENOME PROJECT
[9]  
Brock DJH, 1996, BRIT MED J, V312, P908
[10]  
Calnan M., 1987, HLTH ILLNESS LAY PER