Self-Management and Transition Readiness Assessment: Development, Reliability, and Factor Structure of the STARx Questionnaire

被引：108

作者：

Ferris, M. ^{[1
]}

Cohen, S. ^{[1
]}

Haberman, C. ^{[2
,3
]}

Javalkar, K. ^{[4
]}

Massengill, S. ^{[5
]}

Mahan, J. D. ^{[6
,7
]}

Kim, S. ^{[6
,7
]}

Bickford, K. ^{[1
]}

Cantu, G. ^{[8
]}

Medeiros, M. ^{[9
]}

Phillips, A. ^{[9
]}

Ferris, M. T. ^{[1
]}

Hooper, S. R. ^{[1
]}

机构：

[1] Univ N Carolina, Sch Med, Chapel Hill, NC 27515 USA

[2] Wake Forest Univ, Winston Salem, NC 27109 USA

[3] Victory Junct Camp, Randleman, NC USA

[4] Univ N Carolina, Sch Publ Hlth, Chapel Hill, NC USA

[5] Levine Childrens Hosp, Carolinas Med Ctr, Charlotte, NC USA

[6] Nationwide Childrens Hosp, Columbus, OH USA

[7] Ohio State Univ, Columbus, OH 43210 USA

[8] Univ Panamer, Escuela Med, Mexico City, DF, Mexico

[9] Hosp Infantil Mexico Dr Federico Gomez, Ciudad De Mexico, DF, Mexico

来源：

JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES | 2015年 / 30卷 / 05期

关键词：

Transition; Self-management; Measure; Adolescents; Young adults; Chronic conditions; HEALTH-CARE TRANSITION; TRANSPLANT RECIPIENTS; ADULT CARE; DISEASE; YOUTH; VALIDATION;

D O I：

10.1016/j.pedn.2015.05.009

中图分类号：

R47 [护理学];

学科分类号：

1011 ;

摘要：

Introduction: The Self-Management and Transition to Adulthood with Rx = Treatment (STAR(x)) Questionnaire was developed to collect information on self-management and health care transition (HCT) skills, via self-report, in a broad population of adolescents and young adults (AYAs) with chronic conditions. Methods: Over several iterations, the STAR(x) questionnaire was created with AYA, family, and health provider input. The development and pilot testing of the STAR(x) Questionnaire took place with the assistance of 1219 AYAs with different chronic health conditions, in multiple institutions and settings over three phases: item development, pilot testing, reliability and factor structuring. Results: The three development phases resulted in a final version of the STAR(x) Questionnaire. The exploratory factor analysis of the third version of the 18-item STAR(x) identified six factors that accounted for about 65% of the variance: Medication management, Provider communication, Engagement during appointments, Disease knowledge, Adult health responsibilities, and Resource utilization. Reliability estimates revealed good internal consistency and temporal stability, with the alpha coefficient for the overall scale being .80. The STAR(x) was developmentally sensitive, with older patients scoring significantly higher on nearly every factor than younger patients. Conclusion: The STAR(x) Questionnaire is a reliable, self-report tool with adequate internal consistency, temporal stability, and a strong, multidimensional factor structure. It provides another assessment strategy to measure self-management and transition skills in AYAs with chronic conditions. (C) 2015 Elsevier Inc. All rights reserved.

引用

页码：691 / 699

页数：9

共 18 条

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