What specific socialisation, social, educational and professional for teenagers and young adults with cancer?

被引:1
作者
Roesler, Caroline [1 ]
Pautre, Isabelle [2 ]
Thirry, Dominique [3 ]
Flores, Soccoro [4 ]
Chabbert, Catherine [5 ]
Savre, Nikita [3 ]
Pibarot, Michele [6 ]
Seveau, Marie-Aude [7 ]
Dugas, Karyn [8 ]
Rollin, Zoe [9 ,10 ]
Dumont, Sarah [11 ]
Gaspar, Nathalie [2 ]
机构
[1] Ctr Edouard Rist, 14 Rue Boileau, F-75016 Paris, France
[2] Acad Paris Gustave Roussy, Dept Cancerol Enfant & Adolescent, 114 Rue Edouard Vaillant, F-94805 Villejuif, France
[3] Assoc Juris Sante, 101Crs Gambeta, F-69003 Lyon, France
[4] Inst Curie, Dept DPO AJA, 26 Rue Ulm, F-75006 Paris, France
[5] Assoc Ecole Hop, Gustave Roussy, F-94805 Villejuif, France
[6] Hop Sud, Reseau Reg Cancerol Oncopaca Corse, Grp AFSOS, 270 Blvd St Marguerite, F-13009 Marseille, France
[7] Jeunes Solidarite Canc, 14 Rue Corvisart, F-75013 Paris, France
[8] CHU Bordeaux, Maison Aquitaine Ressources Adolescents & Jeunes, ORSECa, Pl Amelie Raba Leon, F-33073 Bordeaux, France
[9] Univ Paris 13, 1 Rue Chablis, F-93000 Bobigny, France
[10] Lab IRIS, 190-198 Ave France, F-75013 Paris, France
[11] Gustave Roussy, Dept Med Oncol, 114 Rue Edouard Vaillant, F-94805 Villejuif, France
关键词
Cancer; Adolescents; Young adults; Socialisation; Scholar insertion; Professionnal insertion; CHILDHOOD-CANCER; ADOLESCENTS; COHORT; SCHOOL;
D O I
10.1016/j.bulcan.2016.10.015
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Socialisation, education, first jobs and autonomy are key steps to teenagers and young adults (TYA) integration into the society. The occurrence of a cancer in this population increases the difficulties. Although, suffering of cancer do affect TYA life journey at social, scholar and professional levels, from diagnosis to the after-cancer live and sometime forever, few studies exist in France. A national study on TYA with cancer (TYAC) social, scholar and professional pathways is on-going (ESPOIR-AJA). A national survey of the existing TYAC insertion support in 2013 by the "Insertion group'' of groupe onco-hematologie adolescents et jeunes adultes (GO-AJA) revealed structured and ancient support at scholar level based on national governmental or associative structures, but insufficient and non-specific scholar help in secondary school and professional help. Specific initiatives have emerged since 2012 with the "Plan cancer 2''. All these helps remain unequal across the country. A referential on TYAC social, scholar and professional insertion has been prepared by GO-AJA in collaboration with the association francophone des soins oncologiques de support (AFSOS). The impact of the action 9 of the nation "plan cancer 3'' is awaited.
引用
收藏
页码:979 / 989
页数:11
相关论文
共 29 条
  • [1] [Anonymous], 2015, ACCESSIBILITE HANDIC
  • [2] Becquet V, 2008, REV FR PEDAGOG RECH, P158
  • [3] Cohort Profile: The French Childhood Cancer Survivor Study For Leukaemia (LEA Cohort)
    Berbis, Julie
    Michel, Gerard
    Baruchel, Andre
    Bertrand, Yves
    Chastagner, Pascal
    Demeocq, Francois
    Kanold, Justyna
    Leverger, Guy
    Plantaz, Dominique
    Poiree, Marilyne
    Stephan, Jean-Louis
    Auquier, Pascal
    [J]. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 2015, 44 (01) : 49 - 57
  • [4] School Performance of Childhood Cancer Survivors: Mind the Teenagers!
    Bonneau, Jacinthe
    Lebreton, Jennifer
    Taque, Sophie
    Chappe, Celine
    Bayart, Sophie
    Edan, Christine
    Gandemer, Virginie
    [J]. JOURNAL OF PEDIATRICS, 2011, 158 (01) : 21 - 27
  • [5] Cancer Incidence and Survival in Adolescents and Young Adults in France, 2000-2008
    Desandes, Emmanuel
    Lacour, Brigitte
    Belot, Aurelien
    Molinie, Florence
    Delafosse, Patricia
    Tretarre, Brigitte
    Velten, Michel
    Sauleau, Erik-Andre
    Woronoff, Anne-Sophie
    Guizard, Anne-Valerie
    Ganry, Olivier
    Bara, Simona
    Grosclaude, Pascale
    Troussard, Xavier
    Bouvier, Veronique
    Brugieres, Laurence
    Clavel, Jacqueline
    [J]. PEDIATRIC HEMATOLOGY AND ONCOLOGY, 2013, 30 (04) : 291 - 306
  • [6] Educational and Vocational Achievement Among Long-Term Survivors of Adolescent Cancer in Germany
    Dieluweit, Ute
    Debatin, Klaus-Michael
    Grabow, Desiree
    Kaatsch, Peter
    Peter, Richard
    Seitz, Diana C. M.
    Goldbeck, Lutz
    [J]. PEDIATRIC BLOOD & CANCER, 2011, 56 (03) : 432 - 438
  • [7] Evaluation of a program for teenagers going back to high-school
    Dugas, Karyn
    Rollin, Zoe
    Brugieres, Laurence
    Valteau-Couanet, Dominique
    Gaspar, Nathalie
    [J]. BULLETIN DU CANCER, 2014, 101 (11) : 1009 - 1019
  • [8] Educational trajectories after childhood cancer: When illness experience matters
    Dumas, A.
    Cailbault, I.
    Perrey, C.
    Oberlin, O.
    de Vathaire, F.
    Amiel, P.
    [J]. SOCIAL SCIENCE & MEDICINE, 2015, 135 : 67 - 74
  • [9] Educational and occupational outcomes of childhood cancer survivors 30 years after diagnosis: a French cohort study
    Dumas, Agnes
    Berger, Claire
    Auquier, Pascal
    Michel, Gerard
    Fresneau, Brice
    Allodji, Rodrigue Setcheou
    Haddy, Nadia
    Rubino, Carole
    Vassal, Gilles
    Valteau-Couanet, Dominique
    Thouvenin-Doulet, Sandrine
    Casagranda, Leonie
    Pacquement, Helene
    El-Fayech, Chiraz
    Oberlin, Odile
    Guibout, Catherine
    de Vathaire, Florent
    [J]. BRITISH JOURNAL OF CANCER, 2016, 114 (09) : 1060 - 1068
  • [10] Prevalence of aspects of distress coping, support and care among adolescents and young adults undergoing and being off cancer treatment
    Enskar, Karin
    von Essen, Louise
    [J]. EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2007, 11 (05) : 400 - 408