Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice

被引:155
作者
Droes, R. M. [1 ]
Chattat, R. [2 ]
Diaz, A. [3 ]
Gove, D. [3 ]
Graff, M. [4 ]
Murphy, K. [5 ]
Verbeek, H. [6 ]
Vernooij-Dassen, M. [4 ]
Clare, L. [7 ,8 ]
Johannessen, A. [9 ]
Roes, M. [10 ]
Verhey, F. [11 ]
Charras, K. [12 ]
机构
[1] Vrije Univ Amsterdam, EMGO Inst Hlth & Care Res, Dept Psychiat, Alzheimer Ctr,Med Ctr, Amsterdam, Netherlands
[2] Univ Bologna, Dept Psychol, Bologna, Italy
[3] Alzheimer Europe, Luxembourg, Luxembourg
[4] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, Sci Inst Qual Healthcare, Radboud Alzheimer Ctr,Med Ctr, Nijmegen, Netherlands
[5] Natl Univ Irelands, Sch Nursing & Midwifery, Aras Loyola, Galway, Ireland
[6] Maastricht Univ, Res Sch CAPHRI, Dept Hlth Serv Res, Maastricht, Netherlands
[7] Univ Exeter, Ctr Res Ageing & Cognit Hlth REACH, Sch Psychol, Exeter, Devon, England
[8] Univ Exeter, Sch Med, PenCLAHRC, Exeter, Devon, England
[9] VID Specialized Univ, Norwegian Natl Advisory Unit Ageing & Hlth, Oslo, Norway
[10] Univ Witten Herdecke, Fac Hlth, Dept Nursing Sci, German Ctr Neurodegenerat Dis, Witten, Germany
[11] Maastricht Univ, Dept Psychiat & Neuropsychol, Maastricht, Netherlands
[12] Fdn Meder Alzheimer, Psychosocial Intervent Dept, Paris, France
关键词
Social health; dementia; effective interventions; capacity; self-management; social participation; QUALITY-OF-LIFE; LONG-TERM-CARE; COMMUNITY OCCUPATIONAL-THERAPY; RANDOMIZED CONTROLLED-TRIAL; NURSING-HOME RESIDENTS; SKILL-BUILDING PROGRAM; FRAIL OLDER-PEOPLE; ALZHEIMERS-DISEASE; COGNITIVE REHABILITATION; INSTITUTIONALIZED PEOPLE;
D O I
10.1080/13607863.2016.1254596
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Background: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia.Method: Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD).Results: The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified.Conclusion: A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.
引用
收藏
页码:4 / 17
页数:14
相关论文
共 164 条
[1]   Study protocol for 'we DECide': implementation of advance care planning for nursing home residents with dementia [J].
Ampe, Sophie ;
Sevenants, Aline ;
Coppens, Evelien ;
Spruytte, Nele ;
Smets, Tinne ;
Declercq, Anja ;
van Audenhove, Chantal .
JOURNAL OF ADVANCED NURSING, 2015, 71 (05) :1156-1168
[2]  
[Anonymous], J DEMENTIA CARE
[3]  
[Anonymous], COCHRANE DATABASE SY
[4]  
[Anonymous], 2016, International statistical classification of diseases and International statistical classification of diseases and related health problems - 10th revision
[5]  
[Anonymous], 2013, Enabling occupation II: Advancing an occupational therapy vision for health, well-being, and justice through occupation
[6]  
[Anonymous], J DEMENTIA CARE
[7]  
[Anonymous], 2015, GERIATR MENT HLTH CA, DOI [10.1016/j.gmhc.2014.12.001, DOI 10.1016/J.GMHC.2014.12.001]
[8]  
[Anonymous], 2012, THESIS NORDIC SCH PU
[9]  
[Anonymous], AGING MENTAL HLTH
[10]  
[Anonymous], J ALZHEIMERS DIS PAR, DOI [10.4172/2161-0460.1000172, DOI 10.4172/2161-0460.1000172]