Relationships between oncohematopediatrics, mothers and children in communicating bad news

被引:11
作者
Chaves Afonso, Selene Bevilaqua [1 ]
de Souza Minayo, Maria Cecilia [2 ]
机构
[1] Inst Nacl Saude Crianca Mulher & Adolescente Fern, Setor Psicol Med, Fiocruz Av Rui Barbosa 716, BR-22250020 Rio De Janeiro, RJ, Brazil
[2] Escola Nacl Saude Publica, Dept Estudos Sobre Violencia & Saude Jorge Careli, Rio De Janeiro, RJ, Brazil
来源
CIENCIA & SAUDE COLETIVA | 2017年 / 22卷 / 01期
关键词
Truth disclosure; Oncology; Communication; Physician role; Child; END-OF-LIFE; DIFFICULT NEWS;
D O I
10.1590/1413-81232017221.14592016
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
We present a study about the relations between pediatric oncological haematologists, mothers, and children in sharing bad news (BN) in a public hospital in Rio de Janeiro. The text emphasizes the intertwining of technique and emotions for the treatment of children with diagnoses in which the fatal outcome is always a probability. We used a qualitative approach, privileging participant observation and open interviews with oncologists (at this service all professionals were female) and mothers. We sought to understand the importance of communication which includes expressions and control of emotions; bioethical issues that require sensitivity, serenity, and truth about approaching the end of life; and how the professionals balance proximity to children and families and objectivity in their activity. The main results showed: intense exchanges on BN among professionals; relapse of children who were evolving positively as the most difficult news; constant update of BN facing terminally ill children; quality of communication influencing the treatment; professionals permanently balancing between closeness and distance from patients and evidence of the their irreplaceable role to secure the family and the child.
引用
收藏
页码:53 / 62
页数:10
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