Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery

被引：50

作者：

Harvey, Kayla A. ^{[1
]}

Kovalesky, Andrea ^{[2
]}

Woods, Ronald K. ^{[3
]}

Loan, Lori A. ^{[4
]}

机构：

[1] Mary Bridge Childrens Hosp, Cardiac Surg Program, Tacoma, WA 98415 USA

[2] Univ Washington Bothell, Bothell, WA 98011 USA

[3] Med Coll Wisconsin, Childrens Hosp Wisconsin, Herma Heart Ctr, Dept Surg,Div Cardiothorac Surg, Milwaukee, WI 53226 USA

[4] Madigan Army Med Ctr, Ctr Nursing Sci & Clin Inquiry, Tacoma, WA 98431 USA

来源：

HEART & LUNG | 2013年 / 42卷 / 06期

关键词：

Congenital heart defect; Pediatric heart surgery; Mother; Journaling; Qualitative; QUALITY-OF-LIFE; CHILDREN; PARENTS; STRESS; DIAGNOSIS; DECISION;

D O I：

10.1016/j.hrtlng.2013.08.009

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Objective: Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions. Background: Congenital heart disease is the most frequent birth defect in the United States and is common worldwide. Methods: Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email. Results: Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All. Conclusions: Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery. (C) 2013 Elsevier Inc. All rights reserved.

引用

页码：399 / 406

页数：8

共 35 条

[1] Quality of life among parents of children with heart disease [J].

Arafa, Mostafa A. ;

Zaher, Salah R. ;

El-Dowaty, Amira A. ;

Moneeb, Dalia E. .

HEALTH AND QUALITY OF LIFE OUTCOMES, 2008, 6 (1)

[2] An empirical study of parents' reaction to the diagnosis of congenital heart disease in infants [J].

Cohn, JK .

SOCIAL WORK IN HEALTH CARE, 1996, 23 (02) :67-79

[3]

Colaizzi P. F., 1978, Psychological research as the phenomenologist views it

[4] The Meaning of Cost for Families of Children With Congenital Heart Disease [J].

Connor, Jean Anne ;

Kline, Nancy E. ;

Mott, Sandra ;

Harris, Sion Kim ;

Jenkins, Kathy J. .

JOURNAL OF PEDIATRIC HEALTH CARE, 2010, 24 (05) :318-325

[5] Mothers of infants with congenital heart defects: well-being from pregnancy through the child's first six months [J].

Dale, Maria T. Gronning ;

Solberg, Oivind ;

Holmstrom, Henrik ;

Landolt, Markus A. ;

Eskedal, Leif T. ;

Vollrath, Margarete E. .

QUALITY OF LIFE RESEARCH, 2012, 21 (01) :115-122

[6] Psychological adaptation and adjustment of mothers of children with congenital heart disease: Stress, coping, and family functioning [J].

Davis, CC ;

Brown, RT ;

Bakeman, R ;

Campbell, R .

JOURNAL OF PEDIATRIC PSYCHOLOGY, 1998, 23 (04) :219-228

[7]

Ellinger Marcia K, 2010, Adv Neonatal Care, V10, P316, DOI 10.1097/ANC.0b013e3181fc7c5d

[8] Parent Stress Levels During Children's Hospital Recovery After Congenital Heart Surgery [J].

Franck, Linda S. ;

Mcquillan, Annette ;

Wray, Jo ;

Grocott, Michael P. W. ;

Goldman, Allan .

PEDIATRIC CARDIOLOGY, 2010, 31 (07) :961-968

[9] PARENTAL REACTIONS TO CHILDREN WITH CONGENITAL HEART-DISEASE [J].

GARSON, A ;

BENSON, RS ;

IVLER, L ;

PATTON, C .

CHILD PSYCHIATRY & HUMAN DEVELOPMENT, 1978, 9 (02) :86-94

[10] Heart Disease and Stroke Statistics-2013 Update A Report From the American Heart Association [J].

Go, Alan S. ;

Mozaffarian, Dariush ;

Roger, Veronique L. ;

Benjamin, Emelia J. ;

Berry, Jarett D. ;

Borden, William B. ;

Bravata, Dawn M. ;

Dai, Shifan ;

Ford, Earl S. ;

Fox, Caroline S. ;

Franco, Sheila ;

Fullerton, Heather J. ;

Gillespie, Cathleen ;

Hailpern, Susan M. ;

Heit, John A. ;

Howard, Virginia J. ;

Huffman, Mark D. ;

Kissela, Brett M. ;

Kittner, Steven J. ;

Lackland, Daniel T. ;

Lichtman, Judith H. ;

Lisabeth, Lynda D. ;

Magid, David ;

Marcus, Gregory M. ;

Marelli, Ariane ;

Matchar, David B. ;

McGuire, Darren K. ;

Mohler, Emile R. ;

Moy, Claudia S. ;

Mussolino, Michael E. ;

Nichol, Graham ;

Paynter, Nina P. ;

Schreiner, Pamela J. ;

Sorlie, Paul D. ;

Stein, Joel ;

Turan, Tanya N. ;

Virani, Salim S. ;

Wong, Nathan D. ;

Woo, Daniel ;

Turner, Melanie B. .

CIRCULATION, 2013, 127 (01) :E6-E245

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