Internet-enabled pulmonary rehabilitation and diabetes education in group settings at home: a preliminary study of patient acceptability

被引:40
作者
Burkow, Tatjana M. [1 ]
Vognild, Lars K. [2 ]
Ostengen, Geir [3 ]
Johnsen, Elin [1 ]
Risberg, Marijke Jongsma [4 ]
Bratvold, Astrid [4 ]
Hagen, Tord [5 ]
Brattvoll, Morten [6 ]
Krogstad, Trine [7 ]
Hjalmarsen, Audhild [4 ]
机构
[1] Univ Hosp North Norway, Norwegian Ctr Integrated Care & Telemed, N-9038 Tromso, Norway
[2] Norut, N-9294 Forskningsparkentromso, Norway
[3] Hendig AS, N-1900 Fetsund, Norway
[4] Univ Hosp North Norway, Heart & Lung Clin, Dept Pulm Rehab, N-9291 Tromso, Norway
[5] Univ Hosp North Norway, Med Clin, N-9291 Tromso, Norway
[6] Univ Tromso, Univ Ctr Flexible Educ, N-9037 Tromso, Norway
[7] Norsk Helsenett SF, Tromso, Norway
关键词
Internet; Home-based; Group-based; Pulmonary rehabilitation; Diabetes self-management education; COPD; Diabetes; Chronic diseases; Web technology; Open source software; SELF-MANAGEMENT; DISEASE; PEOPLE; CARE; TELEMEDICINE;
D O I
10.1186/1472-6947-13-33
中图分类号
R-058 [];
学科分类号
摘要
Background: The prevalence of major chronic illnesses, such as chronic obstructive pulmonary disease (COPD) and diabetes, is increasing. Pulmonary rehabilitation and diabetes self-management education are important in the management of COPD and diabetes respectively. However, not everyone can participate in the programmes offered at a hospital or other central locations, for reasons such as travel and transport. Internet-enabled home-based programmes have the potential to overcome these barriers. This study aims to assess patient acceptability of the delivery form and components of Internet-enabled programmes based on home groups for comprehensive pulmonary rehabilitation and for diabetes self-management education. Methods: We have developed Internet-enabled home programmes for comprehensive pulmonary rehabilitation and for diabetes self-management education that include group education, group exercising (COPD only), individual consultations, educational videos and a digital health diary. Our prototype technology platform makes use of each user's own TV at home, connected to a computer, and a remote control. We conducted a six-week home trial with 10 participants: one group with COPD and one with diabetes. The participants were interviewed using semi-structured interviews. Results: Both home-based programmes were well accepted by the participants. The group setting at home made it possible to share experiences and to learn from questions raised by others, as in conventional group education. In the sessions, interaction and discussion worked well, despite the structure needed for turn taking. The thematic educational videos were well accepted although they were up to 40 minutes long and their quality was below TV broadcasting standards. Taking part in group exercising at home under the guidance of a physiotherapist was also well accepted by the participants. Participants in the COPD group appreciated the social aspect of group education sessions and of exercising together, each in their own home. The digital health diary was used as background information in the individual consultations and by some participants as a self-management tool. Participant retention was high, with no dropouts. None of the participants reported that the six-week duration of the home programmes was too long. Conclusions: The Internet-enabled programmes for home-based groups in pulmonary rehabilitation and diabetes education were generally well accepted by the participants. Our findings indicate that conventional programmes have the potential to be delivered in socially supportive group settings at home.
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页数:10
相关论文
共 31 条
[1]  
[Anonymous], DIAB FACT SHEET 312
[2]  
[Anonymous], DIAGN COPD
[3]  
Burkow TM, 2008, STUD HEALTH TECHNOL, V136, P83
[4]   A community model for care of elderly people with diabetes via telemedicine [J].
Chan, WM ;
Woo, J ;
Hui, E ;
Lau, WWY ;
Lai, JCK ;
Lee, D .
APPLIED NURSING RESEARCH, 2005, 18 (02) :77-81
[5]   Long-term Oxygen Therapy [J].
Christopher, Kent L. ;
Porte, Phillip .
CHEST, 2011, 139 (02) :430-434
[6]   Tele Health Improves Diabetes Self-Management in an Underserved Community Diabetes TeleCare [J].
Davis, Richard M. ;
Hitch, Angela D. ;
Salaam, Muhammad M. ;
Herman, William H. ;
Zimmer-Galler, Ingrid E. ;
Mayer-Davis, Elizabeth J. .
DIABETES CARE, 2010, 33 (08) :1712-1717
[7]   RETRACTED: Group based training for self-management strategies in people with type 2 diabetes mellitus - art. no. CD003417.pub2 (Retracted Article) [J].
Deakin, T ;
McShane, C ;
Cade, JE ;
Williams, RDRR .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2005, (02)
[8]   How to assess the external validity of therapeutic trials: a conceptual approach [J].
Dekkers, O. M. ;
von Elm, E. ;
Algra, A. ;
Romijn, J. A. ;
Vandenbroucke, J. P. .
INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 2010, 39 (01) :89-94
[9]   National Standards for Diabetes Self-Management Education [J].
Funnell, Martha M. ;
Brown, Tammy L. ;
Childs, Belinda P. ;
Haas, Linda B. ;
Hosey, Gwen M. ;
Jensen, Brian ;
Maryniuk, Melinda ;
Peyrot, Mark ;
Piette, John D. ;
Reader, Diane ;
Siminerio, Linda M. ;
Weinger, Katie ;
Weiss, Michael A. .
DIABETES CARE, 2012, 35 (01) :S101-S108
[10]  
Hjalmarsen Audhild, 2007, Tidsskr Nor Laegeforen, V127, P609