Supported Decision Making With People at the Margins of Autonomy

被引:56
作者
Peterson, Andrew [1 ]
Karlawish, Jason [2 ]
Largent, Emily [2 ]
机构
[1] George Mason Univ, Fairfax, VA 22030 USA
[2] Univ Penn, Philadelphia, PA 19104 USA
关键词
Disability; chronic conditions; rehabilitation; decision making; neurodegenerative disease; aging; neurology; health policy; RELATIONAL AUTONOMY; DISABILITY; DEMENTIA; CAPACITY; COMPETENCE; RIGHTS; RISK;
D O I
10.1080/15265161.2020.1863507
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
This article argues that supported decision making is ideal for people with dynamic cognitive and functional impairments that place them at the margins of autonomy. First, we argue that guardianship and similar surrogate decision-making frameworks may be inappropriate for people with dynamic impairments. Second, we provide a conceptual foundation for supported decision making for individuals with dynamic impairments, which integrates the social model of disability with relational accounts of autonomy. Third, we propose a three-step model that specifies the necessary conditions of supported decision making: identifying domains for support; identifying kinds of supports; and reaching a mutually acceptable and formal agreement. Finally, we identify a series of challenges for supported decision making, provide preliminary responses, and highlight avenues for future bioethics research.
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页码:4 / 18
页数:15
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